[podcast src=”https://html5-player.libsyn.com/embed/episode/id/28138100/height/90/theme/custom/thumbnail/yes/direction/forward/render-playlist/no/custom-color/3e9ccc/” width=”100%” scrolling=”no” class=”podcast-class” frameborder=”0″ placement=”top” primary_content_url=”http://traffic.libsyn.com/diabetesconnections/Ep_593_Final_The_Diabetes_Link_College_Panel.mp3″ libsyn_item_id=”28138100″ height=”90″ theme=”custom” custom_color=”3e9ccc” player_use_thumbnail=”use_thumbnail” use_download_link=”use_download_link” download_link_text=”Download the episode” /]Off to college, just for caregivers! Stacey took part in a webinar panel hosted by The Diabetes Link to talk about advice and experience all around sending young adults with type 1 diabetes away to school.

She’s joined by Anna Sabino, CDCES of Finding Smiles Coaching. The panel is hosted by Diane Rose, director of programs for The Diabetes Link.

A transcript is below

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Diane Rose  0:00

Getting this just for those of you that are here. And we’ll get started chatting, and I’ll keep an eye on a few more others drop it. But I don’t want to run out of time, because we will share this recording with everyone who’s not here. So let’s kick it off. For those of you that are joining us. You’re here for some of you, because you did it, you made it, you dropped off your kiddo just a little bit ago, some of you are anxiously awaiting that time coming up. And this particular zoom, and this particular event and our off to college series is just for you just for the parent, just for the caregiver. Just from your perspective. Obviously, the majority of the work that we do here at the diabetes link is focused on your young adult and their experience and what they’re going through and what support do they need. But tonight, we’re going to talk a little bit about what it’s like from your perspective, because we recognize that supporting them, and helping them thrive also means helping you help them. So that’s what we’re here to chat about what that is some excellent people to talk to both Stacey and Anna, let them introduce themselves in just a second. Just to orient anybody, if you’re new to us, if you you know, clicked on this link, if somebody sent it to you, the diabetes Link was formerly known as the college diabetes network. We have rebranded and expanded our mission in the last year to serve all young adults that have all types of diabetes. But obviously, with this program and our legacy programs, and like our original organization, heart and soul is really focused around that like college experience, which all of you guys can relate to. My only other comment like housekeeping is that the chat is open. So feel free to drop questions in there as they pop up. And as they come to you, and we’ll get to them at the end. We’re not going to we’re going to try to kind of roll through some of our talking points and things that we’ve questions that I’ve prepared for Stacey and Anna, but we will come back and look to your questions that handle kind of scroll through them. So if you think of something, go ahead and go ahead and drop it in the chat and we’ll come back to you. Great, love it. Without further ado, do you guys want to take a minute just to introduce yourselves your connection to diabetes, this caregiver experience? Stacey, why don’t you kick it off? Sure.

 

Stacey Simms  2:15

Hi, everybody. I’m Stacey Simms. I am the host of Diabetes Connections, a podcast for about people with type one. And I’m also the author of the world’s worst diabetes mom book series. My son was diagnosed right before he turned two with type one, he is soon to be 19. He is a college freshman. So we just went through the whole process and the drop off in August. I am also the organizer of moms night out which is new event for moms of kids with diabetes, any type of diabetes. We’re gonna talk more about that at the end. But I have a promo code for everybody. And you can save half. So we’ll talk about that later on. But I’m really excited to share our experiences. I call myself the world’s worst diabetes mom, because I do love we’ll get into it. But I don’t think there’s any sense of chasing perfection with diabetes. I’m all about safe and happy. Which makes me weird and worst in some people’s eyes.

 

Diane Rose  3:10

Not at all. And that’s part of why we’re here is that there are experiences unique to everybody. And there is no one right or wrong way. But there are some best practices and like things we can do to help make it easier for everybody. On that note, Anna, do you wanna introduce yourself speaking of there’s no right or wrong way but helping parents figure it the heck out?

 

Anna Floreen Sabino  3:31

No, my name is Anna supino. And I don’t know where to start. I’ve been living with type one for 34 and a half years. Definitely no right or wrong way. I feel like every day is a different day different roller coaster ride. I am a parent my kids are likely screaming above my head now writing bedtime they are three and a half and six. Knock on wood no type one there yet. Hopefully never. I actually am a former employee of the diabetes link used to run a lot of the young adult programs there. But I have since then open to my own private practice serving youth families, parents, young adults, all living with type one virtually, I live in the Boston area. And working with parents and families and helping them navigate the whole kind of life evolution with T1D on the side is really my life’s passion. So excited to be here. Excited to answer questions. And yeah,

 

Diane Rose  4:39

thank you both for just for our audience. We are super lucky to have both of these incredible women with us to share some insights from all of their lived experiences. So I’m really appreciative. We’re gonna jump right in to questions and a little bit of like couple of the talking points and areas we want to chat about. Um, so from, from our perspective, from the parents perspective, let’s talk about preparation. Being prepared, feeling prepared getting prepared for this process. And I would say that this probably this question specifically speaks to those parents that are just starting their college journey. And their kids are maybe starting the journey, a lot of you responded in the chat that you’re just getting ready or you’re dropping off next fall your kids entering their senior year, very likely, you’re overwhelmed by the countdown of all the things to do college tours, applications, the FAFSA acceptances, packing everything, and then you add in the layer of diabetes prep. And then also, depending on your family dynamics, that depending on your young adults diagnosis date, you’ve probably been taking care of a lot of their diabetes management over the years. And again, that can be different for everyone, right? But that look, that could look like if we were all on camera, we could raise our hands, but I can raise my hands for all of these ordering their supplies, dealing with insurance, middle of the night lows, car counts, school communication, doctor appointments, buying all the low supplies, on and on. And then now your young adult, you know, is 18. And they’re getting ready to be away from you. And they have to take all of this on themselves. And how do you help them get there? How do you prepare for it? So reflecting on like this phase specifically for you, Stacey, can you share about what did you and your family do to prepare for your son’s independence and managing has diabetes? add on to that, what do you wish you would have done differently? Hmm.

 

Stacey Simms  6:37

So what we did was my son was dying was very young, as I said, and I think this really varies if your child is diagnosed older. You know, certainly if your child is diagnosed in the year before college begins, it’s a whole different ball of wax. But we encouraged independence from a very young age. And we reinforced that as my son grew up, and we let him do a lot. That made me very nervous, but that I knew would help us all in the long run. And the whole goal was that we wanted him to be completely independently managed by his senior year of high school, which in my mind meant I would only help if needed, we did the insurance stuff for him in ordering of supplies. And I’m gonna talk about that a little bit more in a minute, because we did change that before he went to college. But for everything else, it was, you know, changing infusion sets, filling insulin cartridges being responsible for everything that was on him. And we were able to do that because we let him go and we let him make a lot of mistakes. And we’d let them manage diabetes in a way that was not the way I would have managed I was just really hard. Especially in middle school when I don’t know I think they lose their brains, but you have to be really patient. So for us, it started with playtime at other kids homes when he was in kindergarten right down the street for two to three hours sleepovers at age seven or eight which is when I let his older sister start doing sleepovers, sleepaway camp diabetes camp to begin with. Then, regular sleepaway camp I sent him to non diabetes camp. And then he did a month abroad is his summer before his junior year of high school. So when he was 16, he went to Israel for a month, which was really hard on me, but he loved and was a real dividing point for us. Gradually, I started turning off Dexcom alerts and alarms. So his senior year of high school, I had no high alert by the end of it, I had no LOW Alert. And during the summer, he was away at the same camp working as a lifeguard, not a diabetes camp. No alarms, no follow. No more. Everyone does this differently. I don’t think everyone has to do that. I think it depends on your child and your relationship to diabetes. But that’s how we did it. And I will also say in terms of insurance companies and ordering supplies, one of the things we did that has been very helpful is we we and you have to do this together. I mean, what a pain in the SSL is, but you have to we had to do this together, you sit down. And every time I had to order something new, I would change the account so that his phone number was on it. But my email was on it. And my son is 18 We have all the legal forms, right, blah, blah, blah. But these companies don’t seem to care about that. They just want to contact so his his phone number because they get the texts, my email. The trick, though, is you have to remember you’ve done that, because he recently texted me like what’s the clarity login? And I was like, I don’t remember what we did. And it took us 20 minutes to figure it out. So long answer to your question. I’m sure more to come. But the answer is we did independence very gradually with a specific goal. And we let go of the reins in a way that made me nervous did not have the outcomes I would have loved but gave us outcomes that our endocrinologist said we’re safe enough.

 

Diane Rose  9:54

Think that’s super real and really appreciate that real perspective. I’m living a little bit of that, just in like moving up to high school experience in our house here with my young adult with type one, it’s a different experience. They’re very hands off, she’s running the show. And it’s a little different, but we’re figuring it out. And it’s a great, I just keep reminding myself, like, it’s going to help her and it’s going to be great as we move, you know, because these four years are gonna go quickly. Anna, from your perspective, either your lived perspective, or what you’ve seen over the years, like working with and talking to parents recommendations, suggestions, what like, what is parenting to independence to you? Because that’s, you’ve introduced that phrase to me, I’m going to give you credit phrase, how do you suggest that parents begin to prepare to let their children take over like Stacey did? Do you have any recommendations?

 

Anna Floreen Sabino  10:45

Um, I mean, Stacy says it’s so well, I, you know, there, I’ve gone to so many different conferences on this idea of transition. And most, you know, clinical teams will say, you know, it has to begin at age 11, or 12, you know, with whatever type of chronic illness or not, you have in your backpack, and whatever that looks like to you, is totally fine. I think the key as you gradually move towards independence is making sure that you’re talking about it, and making sure that you’re having open communication, that you’re constantly on the same page, that you’re setting sort of appropriate boundaries that are shared, like goal setting, and I’m throwing out a lot of different terms there. I’m a social worker and diabetes educator by training. So I do a lot of work with parents on setting shared goals and doing shared decision making and, and really putting on your, you know, active listening ears. You know, teenagers especially need a lot of validation, they need a lot of being told that they’re doing well. And I think sometimes we can forget, you know, everything that they have going on, I was just actually at my CrossFit gym this morning, I was talking to the coach after and she was like, Ellie is so stressed like fall senior year, trying to do early decision still doing keep team captain of soccer, trying to do like yearbook, like doing all the things. And it’s a lot, it’s constantly a lot plus on top of it trying to manage a chronic illness. So even if you are just listening to them vent and complain, just say, I understand that’s a lot. How can I help, like, let’s get through this together and make sure that you guys are on the same team, like moving forward for the next you know, like 350 days till it’s move in day. Because they they need you now and being on that same like cheerleader team, even though they’re the ones that are ya gonna bolus whether they remember or not, or Yeah, gonna maybe not cover for every single gram of carbohydrate. I still do that I’m 34 years in and I don’t cover for every gram of carbohydrate. So remember who they are as like kiddos and teens first, and fill in the diabetes conversations as you as you move forward. Lots of check ins lots of praise, how can I help treat them like the team captain of their diabetes? Because they are.

 

Diane Rose  13:23

I love that team captain and like support active listening lots of like, Great nugget, races, for sure.

 

Anna Floreen Sabino  13:32

And it’s a lot easier said than done. I was gonna say, Oh, that’s so hard to tell us to use all these like cool terms. And then when it gets to the moment, I mean, I listen to the parenting podcast, and I’m like, Okay, I’m not gonna say that when my kids like yelling at me in a tantrum and why? So I think it takes it takes a lot of self compassion. It takes a lot of practice. I tell parents practice in the car with your kiddo. Ask them, you know, how can I help? You know, it sounds it sounds like you’ve had a really rough day. I’m here when you want to talk. And sometimes the kids don’t want you to say anything. They just want you to be in the room. That’s all they want. And that presence is presence enough for 16 1718 year old, but

 

Diane Rose  14:17

also works here with Yes, I think that’s great advice. And I think you’re actually giving us a very natural segue into my next question.

 

Anna Floreen Sabino  14:25

No good.

 

Diane Rose  14:28

Preparation can mean some of the tactical stuff Stacy like you talked about of, you know, bolusing and site changes and filling you know, cartridges and, and Anna to your point. A lot of preparation is communication. And I think that’s another super important topic. It’s one of the ones that comes up obviously in our Facebook group and like in all the areas that we all work and overlap a lot is communication and boundaries. Do especially as your kids going to school and preparing for that time. Do you use Dexcom? Follow yes or no? When do you check in with your young adult of around their diabetes or not at school? What do you do if they don’t respond to you the way you want them to or the way you hope they do? Like they’re not giving you the information that you think you want, or need? Who else needs to know about their diabetes? Their roommates are the professors and RA. You know, ultimately, what we really believe, I think all of us on this call, and specifically the diabetes link, but all of those decisions, all those questions, I just asked her ultimately up to your young adult to lead. But having the conversations in advance, setting expectations in advance and help ease the stress and the frustration on both sides. I’m going to drop in the chat while Stacey and Anna are kind of giving us their lens on communication and boundaries, a link to one of our resources, a sample family communication agreement. But Stacey, if you want to kick it off, what what strategies work for you what like, what kind of communication Do you have around diabetes are so far since he’s been off at school? Is that working? Like do you feel like it’s working for him and working for you?

 

Stacey Simms  16:10

Yeah, sure, I can answer all the questions that you posed there. Oh, no. No, because they really are good. And I would say that communication for us, it’s not something that you can kind of pull out of your pocket when your kid is a senior in high school, right? This is a parenting situation, not the diabetes parenting situation. So chances are good, you’ve been talking to your kids about stuff ranging from doing laundry, to emptying the dishwasher, to changing their cartridge, right, since they were very young, depending on when they were diagnosed with diabetes. And this is just another parenting conversation. I have a conversation with my son at the beginning of every school year, with, you know, what do you want to do with diabetes this year, and we started it when he was in first grade. So first grader, of course, has a lot of ideas and eighth grader grunts at you and rolls his eyes, but you still have the conversation. And so this was a really natural way for us to kind of segue into college with well, how do you see this going? What do you want us to do? Um, it was funny, because when my daughter went to college, she doesn’t have type 1 diabetes. We didn’t talk about how often we were going to communicate. And about four days in every Facebook group I was in was like, I’ve talked to my child 600 times. I was like, I haven’t even texted yet. So I texted her, and I was like, how do you want to do this? And she was like, you know, I’ll call you when I need you. So we decided one, you know, every Sunday, we would FaceTime and then it was up to her. When she would text with Benny. I told him that for the first two weeks, I want them to text every day. And he laughed at me, we actually did a podcast episode on him. And you can hear me mention that you can hear him laugh at me. But we did that. And it was just very helpful. But I have a lot of experience with my kids being away from home. So he’s always been away for the summer for at least two weeks, four weeks, six weeks, 10 weeks once. So I’m very used to that I think it takes it was a good thing for me to get used to gradually. So I got used to less communication. We also knew when we hit decided this, I don’t know probably sophomore year of high school, we talked about it that we our plan was not to follow with Dexcom when he was in college, and we made the decision for a lot of reasons. I don’t begrudge anybody using that. I think it’s a wonderful tool. But I would just caution you that it is a tool you are not it’s tool, which sounds a little harsh, but just the way you use that has to be a way that enhances your life, helps your child Thrive helps you thrive and doesn’t completely stress you out. So we’ve always had a plan for how we use Dexcom. I don’t want to get into it too much here I’ve talked about in the past before written stuff on it. But you have to have the conversation with your kid, whether they’re 17 or seven. How are you using it? What’s the plan when the alarm goes off? Who are you going to call? You know, my son wanted me to follow when he would it was in Israel, which I thought was a terrible idea. What the hell am I going to do here? But we talked about it and we worked out a plan. We decided in college, that was not going to happen. But I was very reassured because my son has always been very upfront and open about his diabetes. And I knew when he talked with this as well, that he would talk to his roommate about it. He was talking to his ra about it, his professors would know his friends would know he’s extremely open. So I felt like he’s he’s shared his Dexcom data with friends in the past, which is I think kind of funny, but works for him. I wasn’t too concerned about it. I also like to mention we went seven years with no Dexcom with no CGM because he was diagnosed ages two to nine. You know, it was back in the day. I know it seems crazy, but Dexcom share wasn’t around till what 2015 2016 It’s new. And we had those seven years to kind of learn what it was like without one and so I’m, I hope he wears it forever. He’s a big CGM kid. He is like waiting nonstop. He’s never without it. He loves it. He works with his system. He has a Tandem so he’s he’s all over it. But I think it gave us peace of mind that he would be fine without it. So that’s a lot I tried to quickly answer a lot. those questions I think I hit a lot of them. But you gotta just gotta keep talking.

 

Diane Rose  20:03

Yeah. Communication and boundaries and strategy. I love that like, with, you know, because it is a challenge going off sending any kid off to college and for you to compare for us like, oh, when we did this with my daughter, but this with any and that can happen with any kids in your family. Yeah, it specifically around diabetes, I think having some agreements and some boundaries around when you’re checking in on him as a human as a person and when you’re also checking in on diabetes is super important. And what about your thoughts?

 

Anna Floreen Sabino  20:29

I was just gonna add to I mean, I think the net one of the one of the number one reasons parents will reach out to me is because of their own stress, oftentimes that the CGM can cause and I also am probably not the best person to answer this because for the first 13 years, my regimen was two shots a day. And we didn’t know any information in between. I went to college actually the same college STC. Big plug for the Syracuse orange. But we you know, I lived in a dorm room and I had I had no CGM. I know that I didn’t have a cell phone until my sophomore year of college. That’s how old I am, I guess. But I used to call my mom after nine because it was free on Verizon. And like, talk about my day. And all she could ask was what are my numbers. And I know that’s not what this is about. But it’s about feeling feeling confident and comfortable with what you’re okay with. And you have to communicate what that means to you and really figure out where you can access that trust with like within you. And I would practice building up that trust and resilience like now, whether it’s going to like having your kid go to a football game or going away on an overnight weekend, you know, not ever I also was a diabetes camp girl and I was gone for eight weeks. And I will say I think that prepared me more than anything to be in college by myself. But I know that’s also not the norm for every high school senior. And if you can practice building up this sense of trust, if you haven’t already, by just turning turning the CGM off, even if it’s for a night, or even if it’s for six or seven or eight hours, to just practice, practice being away from your kid. I mean, we do this for families with summer camp where we there is no access to CGI for parents. And it takes a lot when you get used to the reliability of the information. It’s like a huge letdown. But it’s honestly an amazing break for everyone. And it helps ease that transition. That being said, I work with a lot of college students where they want their parents to follow them. They are used to it that is a safe space for them. There is no right or wrong answer when it comes to communication, they come up with like a secret emoji or whatnot. So it really just depends on like, what works for you and your family. I always encourage and this activity I do with like, all of my clients is really just like write down, you know what’s going well, you know, what’s working right now at home. Because if we don’t focus on what is working, we’re gonna like set ourselves up for a massive amount of overwhelm when it comes to what we want, like this sort of new life to look like, what’s going well right now and what’s working and your endo should do that too. Like don’t only focus on like the yellow parts of the CGM clarity graph, like let’s look at the best day and focus on what happened. Right. But if we’re focusing on what’s going well, we can ultimately have that goal be to just transition a lot of that to just a new environment. You know, what works well at home should also work well at school should also work well at college should also work well on vacation for the most part. So I’ll stop talking. But I think it’s all about just thinking about like, even if it’s like writing down. Okay, this is working well for me, and what might be working well for you might be different than what is currently working well for your son or daughter. And then you kind of have to come together. The last thing I’ll say on that is if you have like a two parent household, make sure the other parent is on board too. Because I know even like I was away last weekend and like the daycare like called my husband instead of me and they’re like we tried to reach you and I was like I’m out of town. You know, make sure the loop that you know the triangle was completely closed, whether it’s a text thread or whether it’s through the nurse or whether it’s through you know that you’re communicating if there’s a shift or a change in terms of how so it’s a communication which is very challenging for already, but if you practice now I promise it will feel that much lighter mentally come August.

 

Diane Rose  25:08

Yep. I mean that practice, practice, communicate. I will say it’s interest for me as like a parent of a younger teenager with type en. Who we’ve only known CGM, right like she was diagnosed and within 30 days was put on a CGM. Absolutely, and I think very typical of parents of like, more recently diagnosed young adults, just completely overwhelmed with that data one and two with the fact that like, I was failing as a parent, because we weren’t keeping it within, you know, certain range or certain expectations. And reminder, that is, you know, that we, as parents had to give ourselves grace, like, I had to figure out time to figure out how to navigate that information and to figure out like, what’s best for my kid and what’s best for us, and that our kids is they take over that control, and they start doing it themselves, they have to wrestle with that as well. Like, if they’re going off to college, and you have a method of what works for you is like mom, or dad or the parent, and what you think is good for them. They’re trying to figure all that out on their own Oh, and like, make new friends and go to school, and you know, all new everything. So you have to, we have to apply that same grace that we have to learn. And that’s a hard one for me to remember. But working on it, hopefully say by practicing the communicating by college, we’ll get there. Um, oh, I think it’s important. Another thing that comes up a lot in the in the Facebook group and like amongst parent conversations, and that, you know, for me going back to the idea of worry, and like, just Worry, worry, worry. I feel like the biggest one when your kid is away from home is what if they don’t wake up to their low alarm at night? What do you do if you’re used to being that backup? And related to that, like other questions that I imagine we have heard run through every parent’s head? What happens in that emergency situation? What is the number, you know, what is an emergency situation? What does that look like to you versus to your kid? Because you’re not there with them? You’re not in the moment. You know, and establishing that like, what what can I do a home? Or how do I you and yours that I didn’t use that fear of something happening and not being able to like step in and help? Well,

 

Stacey Simms  27:23

I want to preface Yeah, let me preface what we’re about when Anna’s the more of a medical professional. So I will preface what I’m about to say with I wish that a panel of endocrinologists would study this, and talk to parents about the reality of overnight lows. Because this is the number one thing right? Everybody fears this and we hear dead in bed, which was coined a million years ago, with older insolence that nobody uses anymore. Can terrible things happen? Yes. But I would urge everybody on the call, and everybody who’s listening to have this conversation privately with your endocrinologist, not something I would talk about in front of your kid. Ask them about the reality. Ask them about their practice, and they will more than likely tell you the biggest thing that they worry about is alcohol, and self harm. So I don’t want to go too much into detail. I am not a medical professional. I don’t have studies in front of me. I’m not going to tell anyone their fears are unfounded. But I would say if you’re getting your information from Facebook about the chances of something terrible happening to your child, bring that information to your endocrinologist. And I brought it to mind who sees 1000s and 1000s of people and I have not thought about it again. Having said that, how do you do overnights and worry about Lowe’s, and right because we want to treat Lowe’s having said that we don’t want them sleeping through it. The anecdotal evidence that I will say of being in the community for almost 17 years is if you wake your kid up for Lowe’s, you treat them for every Lowe’s, they’re not going to wake up for their loads because they know you’re coming in even subconsciously. Most kids, when they are away from home, figure this part out. Some kids want more reassurance. They want that bed shaker to wake them up, they want the sugar pixel to yell at them or whatever the heck it’s called, I don’t have any of that stuff. So I don’t know. But they want that great, wonderful. Use whatever it takes to make them comfortable. Remember, this is about your kid. It’s not about you. So whatever method works for them is great. I would urge you, if you’re freaking out about this and they’re leaving for college soon, do it when you’re there at home, stop, stop. You’re there in the next room, unless your child has an underlying medical condition or other things right. This is another talk to your endo thing. But if they’re, you know, getting a little low and you’re about to run in and treat maybe you don’t and see what happens. I mean, Anna, if you want to chime in I mean, I probably sound like a horrible person but

 

Anna Floreen Sabino  29:53

I cringe at this topic because as somebody who was at one point like the admin of the like Facebook group, it’s like the number one. And we hear you know, I’ve moderated all these panels too. And the number one, you hear parents like knocking on campus security and all that stuff. And, and I agree, Stacy, it’s only going to rile up your own anxiety and trigger this sense of even more fear in you. Because this is a youth thing. This is a parent thing. The kids like whatever, I’m gonna go to school the next day, like they could care less as they should. Their brain, as we all know, like their prefrontal cortex ain’t there. It’s not there until age 25 states, a US Senate teenage brain, forget it, nothing, nothing there quite yet a lot of gray matter has not formed. And that being said, I think we have to remember to that. As much as there are so many times where we think they might be low, we have to learn to trust the systems. So many of us now are using systems that are preventing loads from happening. If you are having an overnight low, that is flat, and there’s not a lot of insulin on board. Now, this is the hard part when you don’t have no access to seeing every single, you know, move or every single bolus. For the most part, if you’re just like, 60 overnight and writing it out, like, that’s okay, our bodies are used to waking up at 60 and flat. If it were me, I wouldn’t treat it. So I think, again, it’s practicing and having those conversations, what does a low feel like to you, I also would not discourage people to kind of try out, you know, substances to like, just see what they feel like, look and see what the CGM is doing. It’s not going to be the same. Every single night. I will also say that, as an educator, I think there is a lot of emphasis on alcohol makes you low. And yes, it can. But just because you have one beer or two drinks, like over the course of four or five hours, and there’s a couple of slices of pizza in there, doesn’t mean you’re going to have a blood sugar of 50 later on. So I just want to emphasize that because I think a lot of people think oh my gosh, I have to set this to basal and I have to put on activity mode. And I have to, you know, make sure I do x, y and z if I have like a few sips. We’re talking about massive binge drinking at the end of the night that is going to suspend that release of glucagon from the liver. Every single person is different. Every single night is different. There’s 1000 different variables. But I think a lot of I’ve seen a lot of conversation out there where it’s like, you know, alcohol causes low blood sugar, and I don’t it’s it’s gray. It’s just kind of like high blood sugar causes ketones. Are you all with you know, it’s a very gray area. So yes, it can be scary. Alcohol is something that is one more variable that can have a delay on low. And we also have tools in our systems like the Omnipod five and Medtronic and the T slim with control IQ that are working their butts off to suspend that insulin if it detects it. So we have to remember that that it’s going to do everything it can to prevent that low from happening. Yeah,

 

Stacey Simms  33:34

if I could just add to and you asked this day, and we didn’t answer it, um, in terms of talking to roommates, and you know how to handle emergencies. This is something that I talked to my son about, but I have to tell you, the probably the proudest diabetes parenting moment I ever had came when he told me and we were just having a conversation about something else. He said every time he has a roommate situation, this was in ninth grade, he told me this like when they go on school trips, they he was on the wrestling team at the time. So they were traveling. And every time he’s got new roommates, he would sit them down and show them the back see me nasal spray, and his the G Bo Capo pen. You know, I love saying these things because we used to only have the red box, which nobody explained ever because no one was going to use that. But these are simple tools that even doofus ninth graders could use. So he would show them. And he would say if I’m ever slurring my words, I’m not making sense. I’m, you know, get the coach, but do this. And he would talk to them about it. And I was like, Wow, that’s great. It’s like, Oh, I do this every time I’m with new people. It’s like what you know, so that was amazing to me. So when he went to college, I said, Well, we talked about it. What are you going to do with your Romaine? I’m going to tell him. I said, Well, what if your mate isn’t comfortable doing that? Right? That’s a lot of responsibility. And he he was stunned. He was like, I have never encountered someone who wasn’t willing to help me. And he said, and that’s what it is if that person is not willing to help me because I would switch roommates. He said I can’t even imagine because you’re just shoving nasal spray at my nose. You’re not doing CPR? And I was like, Okay, well, that and that was his take on it. I don’t know what the policy of the schools would be. But I would have backed him on that if the roommate said he wasn’t willing to, you know, to do a nasal it’s, it’s an interesting question that luckily, we didn’t have to write. But work through

 

Diane Rose  35:17

I mean, I love I just from like, as an as you say, seeing like the Facebook group, and like hearing lots of conversations, a lot of times, I feel like, that’s a lot of apparent question like, Who do I go to? And I feel like, one to speak to, like, how do you handle you know, lows or any emergencies? To have that reassurance to like, take care of our own fear, is to figure out those steps to figure out who you can talk to what do you call Campus Security? Do you call housing? What are your options at a distance if it truly really is an emergency? So that that, like, at least for me, preparation, preparation, preparation, like I want to know what all my options are? That that is something we can do as a parent or caregiver from a distance. You know, know those options, but I feel like and, Anna, correct me, but the two caveats with that are remembering that your kids roommate, even their RA, those are someone else’s kids to both their children. And like, yes, there is a protocol within the organization within your school within their housing, like you do need to follow that protocol. And they are someone else’s kid who’s the roommate is figuring out their life. And like all of their new changes as well. That’s super important to like, respect and understand that, you know, you can’t expect a kid it’s not fair or appropriate, really to expect a roommate to be your like, emergency response for all the things and like you said, Stacy, but he’s had a great experience. And absolutely for anyone that’s close to you, or that you have relationships with. For sure. But that might be different people. It might be a roommate, there might be somebody in the room, three doors down the hall.

 

Stacey Simms  36:59

Yeah, it’s an interesting question. I see what you’re saying. I totally see what you’re saying. And you don’t want to put the burden on people. But at the same time, I think the way my son approaches it, is if I broke my leg, would you leave me lying on the floor? Absolutely. Yeah. You know, I mean, he’s not you know, and it’s it was it’s really interesting question, we could talk about it, I’m sure for its own our, you know, liability and things like that. But yeah, it can’t be the it can’t be legal, the responsibility of that kid. But why would as my son says, like, why would you wanna be friends with somebody who’s not going to help you?

 

Diane Rose  37:27

I think that goes back to ultimately, your kid should lead these conversations. Yeah,

 

Stacey Simms  37:31

I don’t have the roommates phone number, by the way. Great. That was great. I like to for other reasons, are they doing laundry? Are they eating?

 

Anna Floreen Sabino  37:40

Smelly and fun? I think the other piece of advice I would say too, is I think as a parent, we often want to sometimes just like step in and share it all on their behalf. Oh, and, and this and he can do this. It’s like, let them do the talking like this is a practice for them. And they don’t have to the you know, their roommate relationship is going is like a series of first dates for like the whole semester. I remember being a freshman being like, I don’t know you, I’m not going to have dinner with you do you want to pull me in here. And you gradually offload bits and pieces about your life and include diabetes in that. As time goes on, you’re not going to be like, This is what my current current ratio is. And I have to do this, and I can’t eat pizza at all, like in what text message like that would be insane. And I would not want to be friends with anyone. That’s like too much word vomit for a text message. A lot of people ask me, What’s the best way to tell my roommate, I have type one. And I actually would consider a text message. Because it is a big thing to offload onto a random person, you likely you know, some people meet at orientation or you know, our request to be put together. And others are just assigned and you get you know, an email with their phone number and information. And, you know, I don’t know if it would be Hi, my name is Anna and I’ve type 1 diabetes. Nice to meet you. I’m arriving at this day. I’ll bring the microwave like, whoa, rewind. What’s about diabetes? Most of the time, they’ll be like, Okay, thanks for letting me know like so excited to meet you. And I also think it’s an opportunity for you know, if you tell them on the phone, although I don’t even know if people pick up the phone and call these remotes anyway. Or email didn’t happen

 

Stacey Simms  39:29

here. Snap, what

 

Anna Floreen Sabino  39:30

didn’t happen. It was via text messages. Like it allows people to kind of figure out what they want to say and respond on their own time. And don’t be like surprised if they don’t say anything at all about it. It they may just be taking it in or they may just like have all the questions in the world and want to wait till they see you. They don’t want to offend you. A lot of people are so afraid to talk about diabetes because they know that there is a stigma. Oh my gosh, what if I say the wrong thing? What if I have set them. So they may just want to leave it alone. And that’s okay too.

 

Diane Rose  40:05

Yep. I love that. I think it goes back to just the your reminder where you like, kicked in with letting them lead it like that they’re gonna decide when and how to communicate that. And Stacy due to that, like, this is how Benny handled it. And he always handled it. And he always introduced it. Like, that’s how it felt right to him. That’s what worked for him. That’s, you know how he set the tone. But it’s super important to let them leave that communication. And honestly, the this is like tangent on them, I want to move on to one other thing before we get to, hopefully some track questions. It’s also the whole difference of them being minors or being 18. So a lot of things at school, you literally have to let them your note were no longer their point of contact for 504 and accommodations and the disability service office. And same with their roommates and the relationships. And hopefully you’ve been practicing that along the way but emergency situations, you know, lows, how to talk to those roommates, how they set that up, really letting them lead the way and understanding respecting that you do have a young adult. And in the eyes of the college community specifically, they have to call the shots, they have to initiate the communication with the university. And the best thing we can do is support them in initiating that communication with their friends and their community to like you said Anna, like don’t word vomit. I for sure get yelled at by that. But my 15 year old right now. I’m like, Mom, that’s enough. So I’m getting out of the way early. But I think you’re right.

 

Anna Floreen Sabino  41:34

I think the I think we forget they think they’re thinking about it internally a lot more than we think we are, you know, like we’re women. We like to talk we like to analyze, and they’re thinking about it in here. They’re just not sharing it with you. They’re sharing it with their their friends. I had a call the other day with a 13 year old girl. And she’s like, Oh, I don’t tell my parents anything. I’ll tell my friends.

 

Stacey Simms  41:58

But it doesn’t have to tell your parents. What did you tell your parents about your first five weeks at college? What did you tell your parents on the way

 

Anna Floreen Sabino  42:05

home? Like I said it was good. We talked about classes. And we talked about well, and then 911 happened my freshman year? Well, my 911 happened to my third week of classes. So it was honestly it was a very different vibe, my freshman year of school. And in upstate New York, I’d say a quarter you know, the Stasi, about a quarter or roughly a third of our campus is from the New York area. So there’s a lot of solidarity, a lot of solemn lot of vigils were in which it wasn’t a lot of campuses, but it was a different start to what I think was most people’s normal college experience. And we talked a lot about classes, we talked a lot about how are things going. And we also didn’t have the data, my parents had no data, they have no access to any data. They only knew what I was telling them. So they had no option but to trust. And no option but to know that they have done a good job. And that was that was it. I also go to diabetes camp. And they knew that I knew what I was doing because I they knew how much I had appreciated all of what I had learned from a diabetes perspective, but also just like a life perspective on having the built up resilience and self confidence of being a way that could transition from the camp environment to school. So I had this sort of ability for learned self advocacy, which is like, hands down the number one, number one thing that camp taught me, it’s just learning to speak up for yourself, even if it wasn’t your age 10 Hi, I need a band aid. Like that can take a lot of effort if it’s someone brand new. Same with at school, it’s learning to raise your hand when something doesn’t feel right.

 

Diane Rose  43:54

I think that’s the number one I’d say. See, I’ve heard you say that as well. I think last time we chatted but like advocating for themselves and speaking up for themselves is the number one skill set.

 

Stacey Simms  44:02

I have a whole thing on my website right now about that. But you can bet

 

Diane Rose  44:06

I can card super important. And that’s where like as parents we at least I’ll speak for me personally, I won’t speak for all parents that would not be great. But for me, it’s that balance of as you said Anna, like word vomiting or overstepping, or like stepping in and good and good setting it up and modeling advocacy, like when they’re younger and modeling it and saying, Hey, this is how you know like I’m gonna help advocate for you on your behalf with someone or with this teacher in middle school or elementary school or this is how you could talk to your friend and helping them build the tools and modeling it but not just always doing it for them.

 

Anna Floreen Sabino  44:37

I think the other thing that I would say too, and I know that Benny had probably this as well like my parents knew how much I relied on my camp community for my diabetes support. My parents role in my diabetes care was the logistics was the like appointments was the you know Insurance pieces of it. And I would just, I would call my I did get on a pump after my freshman year because I was like, I don’t know, when I give this Lance test, I give it at 11pm. Or like 3pm 3am When I come home like this is too much. So I eventually did get on a pump for my sophomore year, it was game changing. But I still was the one that was like call Medtronic and change the shipping address. This happened once my supplies got sent to camp because I had, and then they had to route it, that just happens. But it’s a lesson learned. And that’s a life adult lesson. So like, I also think it’s okay, like kids are going to make mistakes, like let them learn. Let them build up that sense of resilience. And I forgot what I was going to say there. Well, I

 

Stacey Simms  45:41

think I can jump in on that I

 

Anna Floreen Sabino  45:42

had my diabetes support system in place before I left for college. And I think that’s also important, whether it’s through the link, whether it is through JDRF, or whether it would or whatever it’s through, like have your own tribe, and have your kid have somebody that they can lead to so they feel ever so slightly less alone. Come August

 

Diane Rose  46:03

Yep. Stay say you wanted to add something. And I’m talking about that idea up here. So like, go right ahead, go read having a community

 

Stacey Simms  46:12

go for it. Oh, I was gonna say is so much of what I think comes down to the difficulty with diabetes parenting is that our kids sometimes feel like we don’t trust them. You know, they really feel like by questioning what they’re doing, especially as they get older, that we don’t trust them. We don’t think they understand. We don’t think that we don’t understand the burden, which we don’t, we don’t really get what they’re going through. And so what’s been really helpful for me over the years is to talk to Benny in a way that shows and I messed this up all the time. I mean, whatever. But we try right to say, Look, I know you’re doing a good job, I know you’re doing the best that you can and diabetes just stinks. But I’m I don’t see you doing this, can you show me how you’re doing it? Or, you know, like, Look, your A1C went up, you’ve been told this is true, right? You were totally independently managed for the last three months, and I saw a rise in your A1C and your diamond range went down. I know you’re doing hard work. And I know diabetes is tough. And I don’t say like how can I help Diane, right? Like, that’s a good thing when they’re younger, but I’m not supposed to be helping. So I say to him, to be honest with you. I’m getting worried. But I don’t want you to think that I that you can’t do this. So can you just let me in a little bit and tell me what’s going on? And sometimes they’ll be like, Yeah, I didn’t feel like bolusing for half those meals. And this sucks. And I’m just catching up. And sometimes they’ll say like, I didn’t change my infusion set on time. I’m trying to get better at that. But it’s not working right now for me. Or I think my ratios are really off Mom, it’s not working. Can you take a look? So just teaching like could tell your kids all the time. Like you’d have to say it like this, but telling them that you trust them is huge. Because I think that even though we think like Well, of course I trust you look at all the stuff I let you do. Of course I trust you I think you’re very responsible. They don’t know. They just hear why aren’t you doing it perfectly? Why aren’t you more having more time to arrange Yeah, we need to reinforce to them. We know this is really really hard like that might have happened because you have type 1 diabetes. Yeah, I just saw

 

Anna Floreen Sabino  48:11

I just saw a note from Carrie and they’re like I feel that I feel like I you know my blood sugar was 400 A lot of the time at school and going back to your going back to your comment Diane about how like, you just want to trust them and let them let them take a lead and there are so many reasons why a blood sugar can be high that sometimes isn’t related to their lack of effort. Like the site ripped out or the battery died or like you know, you’re you’re mentioning that like mom I’m trying well maybe she was trying to make it to class on time and the site ripped out on the door of her dorm or you know we there are so many reasons why our blood sugar’s do the way they do adrenaline hormones growth spurts, bad insulin, you know, the list goes on. And I think you hit the nail on the head, Stacy, like we have to replace every negative thought with two positive ones. Because aren’t we forget that our kids, they’re just as stressed if not more than we are. They’re the ones living it and they don’t want to see a 300 they may not say that they may not be like oh, you know I’m really stressed my blood sugar’s 300. I hope I don’t go blind someday like we are 20 year olds will never think if this if this then that. But they’re still stressed in that moment. So how can I know we’ve valid we have to validate it. I know you’re doing a great job. I know this must be so hard for you. How can I help? Yep, let’s like the power of the word. Let’s, let’s figure out a way to make this work. Because you’re on a team together. I know it’s so incredibly hard to see those like three hundreds all the time. And now it’s a matter of if it’s a pattern, let’s talk about it. If it’s one or two times a week, it’s college.

 

Diane Rose  50:08

Yep. That’s I think that’s really great advice. And to Carrie’s comment, like, Carrie, you said, you have the you have experience, you’ve had type one for 50 years. So you have a lot that you know about your own experience. And of course, like your worries, and that your daughter is just a month in. And so that that’s like almost a whole different ballgame of like, the body is literally trying to figure out stabilizing with all of this new stuff. You know, the interventions and things you’re trying to trial and error and figure out what works for her and following. And those recommendations and what do you think and then all the new stuff was school. The only thing I would add that I feel like sometimes the tack that I try, and I’ve heard others and advice that I’ve received is helped me understand, like, I’m just checking in, I’m just checking in helped me understand what’s going on. Like, this is for me, I’m I just need a little more information. Like it’s not that you’re not, but help me understand what’s happening. And then yeah, and then if it’s in the moment, like Okay, that seems like a really stressful moment. And then maybe, you know, like you said, and if it’s a pattern, Hey, I’ve noticed this kind of happening for a while. Have you noticed that happening for a while? Like, yeah, that’s, that’s got to be really frustrating for you like it’s worrying me a little bit, what do you think we might need to change or you might need to do like having that conversation about it.

 

Stacey Simms  51:21

One of the pieces of advice that used to float around more in the community that might help these these newer diagnoses. I’m not quite sure if this will work. But there used to be this thing where you wouldn’t talk about diabetes except an appointment. Right? You’d be like, Okay, on Sunday, we’re putting the time aside. Yeah, we’re doing diabetes talk at 3pm on Sunday, and then you spend 20 minutes hashing it out, like, you know, everybody has to agree to do it. If the kid if you’re 18, or 19 year old does not into this, it will work, obviously, but rather than texting all week, or trying to work in it, okay, I’m gonna ask them how they are, how’s the weather? how was class? And then I’m gonna ask them how their blood sugar is right? Like, just don’t try to work it into a regular conversation, you’re gonna put it right, we’ll try that right. So stupid. We’re going to try to we’re going to try to put that in a real conversation. How can we troubleshoot what’s going on? You may be learning about diabetes, too. We have one family here, who’s the mom who’s had it for 50 years and other family who may be very new to it. So you’re all learning together? I can’t imagine I have a friend whose child was diagnosed a month before her child went to college, and she took an apartment near the college, which I think some people would be very scornful, Abell but I thought was a great idea. You’re all learning together. And she was like, I need to be there to go to doctors and figure stuff out and does he have a shot in his hand, like she had no idea what to do. And then a month after that, she came back. So we all do this in our own ways. But But diabetes is a huge learning experience. So I think putting that time aside to be like, Okay, can we try it this way? And if your kid doesn’t go for it, you know, maybe not the best idea, but I’d also you know, if you’re super worried about complications, and oh my gosh, that 300 is going to keep me up all night. Talk to your endo once again, asked to see the most recent studies all of the studies show that kids diagnosed today are going to be super healthy. You know, even elevated blood glucose is not going to hurt them in the long run. There’s a lot I mean, I’m a I’m a little Mary sunshine I get pushback a lot that I’m too positive but the EDIC study the EI E D IC will will change your life. So go look that up.

 

Anna Floreen Sabino  53:16

I had no CGM offer years of college my A1C was never below and 8.3. And I’ve had two healthy kids, no complications, my eyes kidneys are fine. Not to say that like I am a poster child in any way, shape, or form. But I definitely go over 200 Everyday still, and I try my hardest. And yeah, I hope that is helpful. I hope that doesn’t just sugarcoat life, there are going to be days that are just hard because they’re hard. And I think this is a massive life transition, a massive life transition. And they say it takes like six to eight weeks for anything to sort of settle into a routine. I’m still feeling that big time where I’m in the Boston area. We’re only in like week, three week two of the first five day week of school. And my kids are bonkers.

 

Stacey Simms  54:11

Can I quit while I just want to share a quick story that my son shared with me. So Benny is is I sent him in a you might recognize this. I sent him the world’s okayest diabetic embroidery. I don’t know who’s seen that off to put it on Facebook. I was like, Yeah, sure. It’s like the world’s okayest mom or whatever, versus the rules, okay, as diabetic. So I sent him that, because that’s what he is. He is super into his automated system. He changes his infusion sets. He fills his cartridge, but like he’s not checking his blood sugar all day long. But he called me the only time he’s really reported in about diabetes was he had a really, really tough night he had changed his infusion set and went to bed. And it didn’t take right was kinked something was the matter, whatever. And he was, you know, I’m sure that he just ignored it all night. And he woke up feeling like trash. And he had to deal with that. And he had to figure it out and had to do it. And he just, I mean, I did not see the numbers because I don’t have Dexcom. But I’m sure he was high, like just the word all night. And that is so hard to hear, right? I’m so sad for him. Because what? I’m sorry, what a crappy night. But what I said to him was, that sucks. I hate to hear that. I hope you’re feeling better. And he was like, Yeah, I’m fine. I’m chugging water, you know, blah, blah, blah. And then five minutes later, I texted him back, because it occurred to me, I was like, Thank you for telling me that. Like, oh, my gosh, I couldn’t I just was like, it almost went by so quickly. But I was like, Wow, thank you for telling me that. Because now I feel like okay, I don’t have I’m worried. But I know he’s gonna tell me when stuff goes south. Yeah. And that was cool.

 

Anna Floreen Sabino  55:51

That was really cool. And that’s exactly what you want to happen. That’s what you want to happen. Like, in January, February, April, July, as you still have these like, eight 910 11 months to practice these scenarios. You want them to call you in November when the you’re there at some retreat saying like, Mom, I’m stuck. I don’t know what to do. I thought I had enough insulin, you know, whatever. This is like ridiculous. Yeah. Like you. That’s that building trust. But it’s also building self advocacy. And it takes a lot of guts to put themselves out there and feel a little bit more vulnerable. And to your point, like, it does suck to feel so high like to try to go to class when your blood sugar’s high, and you haven’t had insulin and your site kinked or whatever the reason was, that happened to me last weekend, I felt, and you still have to go on your day. Yeah, we’ll have to go to class. I mean, you could just not go to class and have the, you know, accommodations in place. But most people don’t want to do that. Most people just want to go to class, because it’s easier, give the injection and go. That’s what I did. I was like, no, no, you know how to do this pull through? And?

 

Diane Rose  56:58

Yeah, yep. No, I think that’s I mean, like, all of it, you’re filling my cup with, you know, a young adult. And I think the feedback that we’re getting in the chats, thank you for those, you know, your parents that are like, open and sharing with us about your experience, your fears, your worries, and even just being open to hearing like another perspective, that’s, that’s what it’s all about, right? Like we keep supporting each other. Yeah. We’re getting to the end of our time, we’re actually no, we’re at the end of our time. And we could probably do this for another hour. But I want to be mindful of everyone’s evenings and, and childcare and things to do. One of the things we didn’t get to talk about, but that I just want to acknowledge is the concept of self care. And all parents have all felt that like you, you know, you can’t fill from an empty cup. One of the things that I would encourage all of our parents to think about and would have asked you each, we had time, and we don’t really, so but maybe if there’s some stuff in the chat, how do you do that? I know like, at least as a parent, you know, if especially right now, if you’ve just drop your kid off, it feels different at home, it probably feels a little empty, it probably feels a little lonely or you know, you’re craving that connection that like daily text with your young adult. Or maybe you’re used to like being in it and like you said, following watching those numbers interacting with them daily, it’s different. So how do you how do you navigate that self care piece as a caregiver as a parent, fill your own cup, keep it together. I think the title or one of this event is like staying sane while they’re off living their best lives, like keeping it together for yourself so you can show up for them. So quickly for either of you. Do you have any like tips or tricks, Stacey something that like works for you, that’s like your go to Anna for you, or that you recommend to parents?

 

Stacey Simms  58:46

Yeah, I’ll be very quick. I got three, you’ve got to be selfish, and start being selfish as a mom as early as an orphan as possible. I know this is very difficult for most of us. Put at the back of your mind. being selfish is a wonderful thing. You’re not going to be a terrible person, you’re not going to be very, very selfish. do stuff with other diabetes, moms, things like this. On Being in the Facebook group, doing local meetups, if you know anybody locally, take them out for coffee, go to Panera say, I’m going to be here Thursday at noon. If one person comes great if 20 people comes even better, but just do it. I’m here. Put yourself out there. Don’t be shy. And then of course moms Night Out is really what you should do. And we could talk about that at the very end. But that’s a big event for more moms but do stuff with other moms who get it. They’re really really is very important. Also, it’s a good idea. I hate I don’t It’s not judging. If you’ve always stayed home with your kids. That is so awesome and wonderful. Do not lose yourself. Who are you? What do you like to do? What makes you happy what Jazz’s you up outside your kids, figure that out and do it. It’s never too late. You can go back to school, you can just sit and read a book. You know, cleaning your house makes you happy, great quilting. I don’t know singing jazz, whatever, figure out what makes you happy and pursue that If you have little kids,

 

Anna Floreen Sabino  1:00:02

I don’t think I have anything else to add. But like that number one man on like, be selfish, like, I booked a pedicure today for Friday. And I think it depends on your age kids, right? I sneak in an hour to do something like that. And between my last client and by pick up my kid that preschool like, Okay, I bring my book, I don’t bring my laptop, and like, that’s my self care. But I also think like, you have to set boundaries for yourself too. And the last thing I’ll say is just just practice, like, you don’t have to be with your kid 24/7 Nobody wants that. I don’t want that. And they don’t want that. So lean into what you love and keep, keep filling that cup in whatever way it makes sense to you.

 

Diane Rose  1:00:47

Love it. Thank you both so much. I’m dropping into the chat where you guys were talking my email here, just for No, I’ve dropped in some links to the resource hub. If anyone wants to get connected to either Anna or Stacey, and the work that they do. You’re welcome. Just email me and I’ll connect you. We’ll put some links in the chat as well. And we’ll send them up actually in your follow up email for the recording, too to Anna’s business finding smiles coaching, she’s got specifically anatomically I’ve got this right hoping for caregivers course that starting in like in a few weeks, it’s like a little mini course but literally where you’re working with caregivers like this. So

 

Anna Floreen Sabino  1:01:28

yeah, it’s a three part mini series, burnout, boundaries, communication, all that good stuff. I also work with a lot of college students separately, one on one. So

 

Diane Rose  1:01:40

for student or for the parent and to your to your point, diabetes link is proud to start sponsoring some of the moms night out events, it’s a great opportunity to and to be in person I know I’m hoping to get my self to one. And as you mentioned there is you’ve so generously offered a discount code to the diabetes link and we’ll share that out in the email as well but it is I just want to cosign like it’s a great opportunity if one of Stacy’s events is coming near you to like meet up and just spend some some of that self care and like community time with other moms who get what you’re going through. It’s good stuff.

 

Stacey Simms  1:02:19

We got cocktails, and mocktails. Great.

 

Diane Rose  1:02:22

Oh my gosh, definitely, definitely sign me up. Be sure to check out the resource hub. That’s my last plug. Like it’s mostly for young adults. The Diabetes link is an organization does a ton of work. And we have done a ton of work of moving all of like the work we’ve done over the years and supporting your young adult with things that we talked about tonight, partying and drinking and substances and how to talk to your roommates, and how to deal with accommodations and what accommodations to request. And all of that’s on the hub. And there’s a section for parents and caregivers as well. Some like great just perspective and things to kind of help support you support them. And that’s what we’re here for. Thank you for joining us. Keep an eye out for that email. Don’t hesitate to reach out. Connect with us in the Facebook group and we’ll talk to you all later. Thank you. Thank you Stacey and Anna. Bye, everybody.

 

Transcribed by https://otter.ai

 

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