Benny and friend on a camel in Israel


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My son Benny is back from a four week trip halfway around the world with a non-diabetes camp program. He says it was amazing! To be honest, I had a really hard time with it. This week, we share how we prepared, what went wrong, how Benny deals with feeling different on these types of trips and a lot more.

Previous episodes with Benny:

14 years of T1D

Benny & Stacey talk untethered and more on their way to the endo

Talking about Control IQ & addressing kids’ questions about diabetes

Our 12 year diaversary

Ten years of T1D – our whole family speaks up

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

We talk about the VIVI cap which helped keep Benny’s insulin cool. Check out VIVI-CAP www.tempramed.com – use promo code DIACON21 to save 10% off your purchase! (promo code valid through 8/31/2021). We are not compensated for use of this promo code, it’s just a nice discount for listeners. They did send us the product for free.

Check out Stacey’s book: The World’s Worst Diabetes Mom!

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Episode Transcript below:

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Stacey Simms  0:00

Diabetes Connections is brought to you by Dario Health manage your blood glucose levels increase your possibilities by Gvoke Hypopen the first pre mixed auto injector for very low blood sugar, and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.

This is Diabetes Connections with Stacey Simms.

This week, I sent my teenager with type one halfway around the world for a month with a non diabetes regular camp program all the way to Israel. He’s home safe, and I thought it would be fun and interesting to talk to him about how it all went.

Are you glad you went with all the work you had to do?

 

Benny  0:43

I am so happy I went I’m so happy you guys let me go. It was amazing.

 

Stacey Simms  0:49

Benny is 16. And we share how we prepared what went wrong, how he deals with feeling different on these types of trips, and a lot more.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

Welcome to another week of the show. Always so glad to have you here. You know, we aim to educate and inspire about diabetes with a focus on people who use insulin. My son Benny, who you’re going to hear a lot of this week was diagnosed with type one right before he turned two. He is now 16. My husband lives with type two diabetes, I don’t have diabetes. I have a background in broadcasting and that is how you get the podcast.

And I’ve talked about this for a while on the show. We’ve been planning for quite some time. But if you are brand new, earlier this summer, we sent our son Benny to Israel for four weeks. I still can’t believe we did it. bit of background. He has attended this irregular summer camp about four hours away for us in Georgia since he was eight years old that first year for two weeks. And for a month every year since except 2020. Of course due to COVID. He also goes to diabetes camp. He started going to the sleepaway diabetes camp for a week, when he was seven, he went to a little day camp in our area, he mentioned that he gets called kudos, he went to that when he I want to say he was three or four years old, he was very, very little. And that’s a wonderful program as well. But for this year of the regular camp, when you are a junior, when you’re going to be a junior in high school, there is an option to go to Israel. So while we don’t know all the staff who went we know the program, they know us the kids know Benny, and they know the type one situation as much as friends can. Even so this was really hard. It was mostly hard just for me.

But I’m going to come back after the interview and tell you a little bit about the lowest moment I had for real when he was away. And how it was it was honestly perfectly timed. I was so lucky to have the support that I did. I’ll do that after the interview. A couple of notes before this interview. If you are new to the show, and you haven’t heard any of my interviews with Benny before, he is a bit silly. He’s a bit sarcastic. And you know, I think our whole parenting or family style leans a bit toward that toward darker humor. So please No, and I’m sure I don’t have to say this. We take diabetes very seriously. He is in great hands in terms of health care, and our endo who we’ve had, we’ve been seeing him since he was two things were doing great. I also want to say that I am a bit troubled by the comments you’re going to hear Benny make about diabetes camp, but I’m choosing to leave them in like it’s how he feels right now. Just remember when you listen, this is a 16 year old, who may not have the best memory of when he was younger. But I know how much he loved diabetes camp and how important it was for I think for the confidence that you’re coming from him now. And we’ll revisit this issue when he gets older. But we have done other episodes about how much he liked camp. So I’m gonna link those up as well if you want to listen. But look, how you feel is how you feel. And that can change at different ages doesn’t make it any less valid. So I’m leaving those comments in. And after you listen to the interview, if you have any questions or stuff you’d like us to follow up on, please reach out, you can always go to Diabetes, Connections comm and contact me through the website. We have a Facebook group Diabetes Connections, the group, and of course, I’m all over social media. But I’d love to know what you think especially those of you who have teenagers or young adults who were not teenagers so long ago, you know, I’m curious to know because I wonder and I worry sometimes about being so open about this, you know, we are so far from perfect. I do worry a little bit about you know some backlash, frankly, and some people thinking we’re really doing it wrong. So let me know what you think. But be nice about it.

All right. Diabetes Connections is brought to you by Dario, we first noticed Dario a couple of years ago at a conference and Benny thought being able to turn your smartphone into a meter was pretty amazing. I’m excited to tell you that Dario offers even more now. The Daario diabetes success plan gives you all the supplies and support you need to succeed. You’ll get a glucometer that fits in your pocket unlimited test strips and lancets delivered to your door at a mobile app with a complete view of your day. The plan is tailored for you with coaching when and how you need it. And personalized reports based on your activity, find out more go to my dario.com forward slash Diabetes Connections.

 

Benny  5:13

Hi, Benny, how are ya? I’m great. How are you?

 

Benny  5:14

I’m great. How are you?

 

Stacey Simms  5:16

I’m doing very well. You’ve been home for three weeks as how are you settling in?

 

Benny  5:20

Great. I want to go back. I miss my friends.

 

Stacey Simms  5:23

Yeah, I’m sure. I’m glad you had a good time. So I have a lot of questions for you.

 

Benny  5:28

From Listen, stop. Hi, listeners,

 

Stacey Simms  5:33

parents and adults with type one. But first, let me just ask you How was the trip? I mean, I tell everybody how the trip was

 

Benny  5:40

very, very fine.

 

Stacey Simms  5:43

And we’ll talk more in detail about diabetes stuff. But did it meet your expectations? Like Was it a good time?

 

Benny  5:49

Honestly, the most fun was when they just kind of let us do whatever in the hotels,

 

Stacey Simms  5:54

history, religion, majestie, no big shakes, just hanging out your friends.

 

Benny  5:59

Two days before we went to some banana boating thing. All the counselors were talking about how much fun it is like they all did it. And it’s super cool. And it was really boring. Oh, you’re the worst.

 

Stacey Simms  6:11

Alright, so let’s talk diabetes stuff.

 

Benny  6:13

Oh, okay.

 

Stacey Simms  6:14

Um, we planned a lot of this. We talked to the staff and they knew you because you’ve been there for a long time. But not all this stuff know me.

 

Benny  6:21

I had one of the counselors as a counselor at Camp Coleman. Two years back, no, three years back. And then one of the other counselors was in our unit early early.

 

Stacey Simms  6:35

I guess my point is, you have been to this camp since you were eight years old. So while perhaps the people that were on your bus, you know, the the staff Yeah. familiar, the system, the people that I needed to talk to you understood that this was just you didn’t just show up that day, and say, I’d like to hang out with these campers, so they knew who you were. So we did a lot of planning in advance that I can talk about at a different time, because I don’t want to get too bogged down in all of that. But let’s start with what involved you, which was the packing anything to share. I mean, we just went through and figured out what you needed, and then added half more, we gave you like, 150% of what we thought you needed. had that go for you.

 

Benny  7:11

I didn’t touch 80% of what was medical wise. I mean, there wasn’t much need for it all. Like it was nice to have it in case I didn’t need it. Most of it was like die hard situation. Like if you’re going through the desert for 18 weeks, and then swimming through the negative. What.

 

Stacey Simms  7:32

I don’t know if you can swim through it. But I mean, like knock wood we sent you with, I think two vaccines and one GMO pipe open. So you didn’t use any of that. Right? So that kind of stuff. Thank God. Now of course, of course, we sent you with more insulin than you needed normally. And you use a ton less insulin. Yeah. Which we’ll talk about. Well, I

 

Benny  7:51

used most of the vials, right You certainly with

 

Stacey Simms  7:54

right? But I sent you with pens. Also, you know, I sent even lots of extra stuff. I’m curious and I mean, not to put you on the spot. But why don’t you use a nice medical bag? Why won’t you let me send you with something that is organized easily? much work the blob of a bag that you use too much work. It’s so gross. It’s one big compartment.

 

Benny  8:15

It works. It does its job.

 

Stacey Simms  8:18

We do break it up with little bags inside. But I gotta tell you, I know it’s not me, but I would I would get like a nice medical bag

 

Benny  8:25

with little find a medical bag, and we can talk about it.

 

Stacey Simms  8:29

I have like 10 that I would get Oh, you’re the biggest pain. Okay, so we’ll look for that. Like this thing. No, that’s a that’s a packing cube.

 

Benny  8:37

Hmm. That Well, mine is packing you.

 

Stacey Simms  8:40

Well. Yours is part of a packing cube system. Yes, you have. For those of you who know packing cubes, I enjoy them. I have them all different sizes. Then he uses just one big rectangular bag for your medical supplies that he carries out at home in his backpack. And it’s great because it has everything in it. But it’s horrible because it has everything in it. I like you should compartmentalize. I

 

Benny  9:02

already do that. Give me a face in different way.

 

Stacey Simms  9:04

Yeah. Alright, so then you had everything packed. And you had your medical bag of all your diabetes stuff inside a backpack that I assume you took every year. Okay. Is it a Camelback? Did it have water? I don’t remember Oh,

 

Benny  9:14

so I had a hiking bag right that I threw a Camelback bladder in

 

Stacey Simms  9:20

Was it easy to get water all the time?

 

Benny  9:22

Oh yeah. They made sure you had a you weren’t allowed off the bus if you didn’t have three liters minimum of water would you

 

Stacey Simms  9:29

perfect What about the the plane ride there that I know it’s so long but you know for me not fun for me you got on a plane in Charlotte and you flew by yourself from Charlotte to Newark then you met the group went Newark to Israel and for me once the Dexcom signal disappeared in Charlotte like that was pretty much it cuz you got on the plane oh yeah appeared you had it but I didn’t have it that was pretty much it for the day for me cuz I’m not gonna do watch you How so? How was it? You know? Did you do okay? Especially on the plane.

 

Benny  9:58

I didn’t do anything. Special, like at all. When I got to new work, my blood sugar did go low a little bit, but I had food. And then I was fine.

 

Stacey Simms  10:07

He told you look out for this baggage claim Lowe’s, when you get off the plane after you’ve been on the plane for a while and start walking, it was terribly described with it we’re going to be this is going to be one big complaint episode I can tell grievances will be aired.

 

Benny  10:19

I just like to make it known. I may complain a lot about it. But I loved it.

 

Stacey Simms  10:23

Thank you for that disclaimer. Because I know you loved it. You read you just like to complain when you get a chance. Yeah. So you get there. I’m not going to I promise I’m not going to go blow by blow the whole trip. But I am curious. That’s a very long plane ride. As you said you didn’t do anything really special? Did you consider changing basil rates walk around or anything?

 

Benny  10:43

So the first trip the flight there, I didn’t even think about it. And it worked out pretty fine. So on the way back, I didn’t touch it.

 

Stacey Simms  10:51

Alright, well, that’s control IQ helping. That really helps a lot. Because in the past, we’ve, if you’ve been in the car for three or four hours or a plane ride, you’ve gone so high, so that’s really good. Okay, so we had set up different basal rates in your pump. Yeah, because we assume there would be a lot of activity. So as I recall, we had the regular one, then we had a 15% less insulin and the 30% lessons, and we labeled them. Yeah, 10% less, you switch to that when you got there.

 

Benny  11:15

The first full day we were there, I switched immediately to the 30%. Less one. And I was Hi, pretty much the entire day. And I did that for about a week. And then I texted you. And I thought the 15% less would be too much. So we made a 20 like 3% one. But eventually, I ended up just switching back to my normal basal rate. And I mean, that was fine.

 

Stacey Simms  11:40

One of the questions that we got and that I was going to ask you about here is talking about how difficult it was to carb count. Forget the activity for a minute or two. But like with all the foods that you do, yeah, no,

 

Benny  11:50

it was next to impossible to know exactly how much I just kind of guessed. And sometimes, or at least most of the time, breakfast and lunch, it was next to impossible to know how much I should give myself because I didn’t know what kind of activities we were doing. And I didn’t know how like extraneous they would be.

 

Stacey Simms  12:10

Well, they would tell you in the morning, though, wouldn’t they what you were doing? I mean, I knew

 

Benny  12:14

what you were doing. Well, they they tell us the night before, but like it was vague. It was like okay, we’re going to go on a hike tomorrow. And that could mean we’re going to walk 10 feet up in elevation, up some stairs and then look at a valley or canoeing. We’re going to walk through the negative for four days.

 

Stacey Simms  12:32

I feel like I should have asked you more about like when you were going high when you first got there because you gave yourself 30% less insulin. How did you feel like were you uncomfortable was fine. Yeah, you never feel bad when you’re high?

 

Benny  12:42

Well, I mean, sometimes. Yeah, I know. I know. But yeah, no, I was fine.

 

Stacey Simms  12:46

But mentally were you? I mean, I I don’t even have to ask because you you didn’t get stressed out. You never get stressed out because of diabetes. Like Were you worried like no, no, I mean,

 

Benny  12:59

the only time I was where I was worried about going low during the desert. Yeah, but that was about it.

 

Stacey Simms  13:05

So tell us about that. What was the desert when you say that? What was that?

 

Right back to Benny answering that question. But first Diabetes Connections is brought to you by Gvoke Hypopen and when you have diabetes and use insulin, low blood sugar can happen when you don’t expect it. That’s why most of us carry fast acting sugar and in the case of very low blood sugar, why we carry emergency glucagon there’s a new option called Gvoke Hypopen the first auto injector to treat very low blood sugar to Gvoke Hypopen is pre mixed and ready to go with no visible needle in usability studies. 99% of people were able to give the book correctly find out more go to Diabetes connections.com and click on the Gvoke logo. Gvoke shouldn’t be used in patients with pheochromocytoma or insulinoma visit Gvokeglucagon.com slash risk.

Now back to Benny talking about the only time he was really nervous about diabetes on the trip

 

Benny  14:05

is like the third or fourth day we were there. And they made us pack our bags. We left the hotel. We put our big bag with money with the majority of our clothes under the bus and we didn’t see that for three days. We had a medium sized like duffel bag, which had clothes for the next few days. And then we had our you know our backpack. So the bus would drive our medium bag to the next camping spot. We’d unload that and we’d carry our our normal bags with us. About 20 minutes into the first hike. I immediately went low. So the medic that was with us, like prepared. You know I talked to her. She was great. She had like four like hand sized bottles of like squeeze honey, and I downed like half a one like 20 minutes into the trip. That was pretty much the hardest, battling Those lows was the hardest, like the most difficult thing I had with that diabetes pretty much the entire trip.

 

Stacey Simms  15:05

What was the medics reaction? Was she just met? Oh,

 

Benny  15:07

no, she cool. She was, um, she was a medic in the IDF. She had worked with kids with diabetes before she’d been on the trip. And she was fine about it. So

 

Stacey Simms  15:15

she didn’t make you feel weird now. Okay. How was the honey? It’s pretty good.

 

Benny  15:20

You know, eventually, I just got to the point because I mean, it was a constant battle for the entire trip. Make sure it Angola eventually just got to the point where I just like, tapped her on the shoulder and she’d be like, okay,

 

Stacey Simms  15:31

and that was three days. Yeah. Okay. So that was probably the hardest part. Yeah, I miss those three days.

 

Benny  15:36

It didn’t help that we were grotesquely underfed.

 

Stacey Simms  15:40

Okay, complain away. Hit me with the breakfast so late

 

Benny  15:43

for lunch and dinner. We’re fine everyday. I still don’t understand why. But breakfast, you know, we’d like in the early hours of the morning 530 to 11. breakfast every day was a cup of tea and a single cookie. And I will never understand it. We’d hike, you know, and then at 11 we’d sit down and have lunch. And then we wouldn’t do anything until dinner. And I don’t understand why lunch and dinner were so big. If we’re not doing anything. Did you ever put anything in your bag?

 

Stacey Simms  16:11

Like for the next morning was? Yeah,

 

Benny  16:12

well, so my friend Nathan had these like, you know, those like gels that bikers use on there. Yeah, he had a bunch of those. So I stole a couple. They had like 100 milligrams of caffeine in them to be perfect. But you

 

Stacey Simms  16:23

never put like a pita in your bag for the next day. No,

 

Benny  16:26

gingers weren’t like, stuff we could take with us. I’m just kidding. And then they were like, I mean, it wasn’t like we were literally in the middle of the desert with no way. Yeah, we had to walk or we wouldn’t be able to get out. There was always you know, bus was always a 20 minute drive away.

 

Stacey Simms  16:40

What food Did you like the best shwarma

 

Benny  16:44

shwarma in a pizza with hummus. There was some spice, we can never figure out what it was. It looked like a red chili sauce. But they always just pointed at it and said you want spicy. You know that when you know lettuce, pickle, blah, blah, blah, whatever. Every time, every lunch.

 

Stacey Simms  17:02

That was yummy. So good. I would assume that after a month of eating pretty much the same thing. You figured out how to dose for food if not for the activity. Yeah,

 

Benny  17:09

after a while, we stopped doing, you know, like intense, hard activity. So I kind of had to readjust again, because it was like in the middle. It was you know, it was hot. And we’d walk a lot, but it wasn’t like, hard. You know, like, I’m gonna die. It’s 106 out.

 

Stacey Simms  17:28

So everybody wanted to know what surprised you about the trip or about the trip about diabetes, whatever that means to you.

 

Benny  17:33

Um, how bad the plane food was,

 

Stacey Simms  17:36

oh, plane food has a reputation of being delicious. I can’t I mean, why would that surprise you?

 

Benny  17:41

I’ve never had like, a long in a flight. But yeah, but you ate it? I didn’t on the way back. Oh,

 

Stacey Simms  17:48

that’s what surprised you. Yeah. I’ll tell you what, surprise me. Oh, okay.

 

Benny  17:55

So closer to the end of the trip, they took us around to a bunch of different kinds of people. We met Orthodox Jews, a Palestinian, a druid drude, we met someone who just lives in Israel, you know, doesn’t believe in anything. And we got other perspectives on everything. And just the way, you know, as a complete outsider, in the way they all see everything is just so different in the way that they saw things compared to each other. I mean, I had never taken into, like thought how different people could see the same thing.

 

Stacey Simms  18:31

That’s really interesting. That’s great. What surprised me the most was that you didn’t have one instance while you were there. And this is all about diabetes, for me of the kind of thing where every once in a while, you’ll forget to put your pump back on, or you will have a site crash out and you won’t change it or just something happens where every once in a while you are 400 you know, for three hours, and I’m like, what’s going on? You’re like I fixed it, I rage bullets and all that stuff. And I was sure that that was going to happen a lot. It didn’t happen once. It didn’t have only one high, you went low, but it didn’t happen once. And I gotta tell you, I’m so proud of you. And maybe that sounds like a low You’re welcome. Maybe it sounds like a low bar as you listen. But you send a 16 year old off by himself, right? Nobody was. And to be clear, no one was checking you every night. Nobody was right, nudging you. So

 

Benny  19:17

Yoni, I love him. He’s my favorite person of all time. I love you. And I know you’re not listening. He was the counselor that we decided would check in on me make sure I’m not dying. Because he was in my cabin. A couple years ago, the counselors would come around and do room checks, make sure everyone’s in their room. And he’d always you know, he’s like many of you dead. That’s what he’d say, you know, I’m good. And but you know, we both met you know, we both knew he meant like, is your blood sugar? Good. You know, you’re dying. Yeah. And every once in a while, maybe once a month, once a week. I get a false low in the middle of the night because I’d be sleeping on my Dexcom my Dexcom was super sensitive to compression lows. Ya know, cuz

 

Stacey Simms  20:01

I got those low alerts to

 

Benny  20:02

every low in the middle of the night, besides one or two of them were compression lows. And it was crazy. But he was following you. Yeah. So so that’s where I was going with that he’d text me in the middle of the night, you know, like 1am 2am. And he’d be like, Do you need help? because he’d wake up to it. Sure.

 

Stacey Simms  20:20

I shouldn’t laugh. That’s

 

Benny  20:21

fantastic. And don’t get me wrong. I was funny. Yeah, I was fine. And then in the morning, every day, I’d have to go up and like, hug him and say, I’m sorry for waking him up.

 

Stacey Simms  20:29

But that was really cool. And I probably should have mentioned that already that we did. That was part of our protocol. And then on the other side of things, we decided I would follow, I turned off all my alarms except urgent, low. And the idea was, well, what am I going to do? If he’s 50? Right. And I’m in Charlotte, and you’re in Tel Aviv. So what we decided was, I would not text you right away, I would wait like 20 minutes or something. And then I would text you if I couldn’t get you over text only. And I would text a D, a D. And I think in my head, then I was like, then I’ll text the people in New York. And then I’ll text the embassy. Like, I had this plan in my software. Forgive me, I was so nervous. But it never got to that point, because let me just give you some credit. The two times there was urgent lows that came in, but they resolved or I could tell that they were fake. They resolved very quickly. There were two times when I texted you and you texted me right back. And that was I don’t know if you know how great that was. That helped me so much that you just said it’s wrong. I’m fine. It was great. So thank you.

 

Benny  21:29

We had three Israelis on our bus as counselors. And when then we had two Americans from Camp Coleman. One Israeli was like the main guy, he was our tour guide. I mean, he was also a counselor, but he was he was like the unit head of the bus. But the other Israeli shy. Me Yoni and Shai would went outside on like the third day and your neighbors like just in case I’m not there, I want you to show her how to awake you. So I showed her the hypo pen and the vaccine me showed her how to use it. And I told her on my pump, if the numbers red, use those if it is yellow, do not use those. I don’t use them both. Oh, yeah. You know, I talked to one of the others. But like if the number is yellow, do not use those color hospital. Use the thing den call hospital. Every time we moved hotels, we’d get a new room with new people. So every night on the first night, I’d tell them you know where the type of pen in the back seam er, I tell them how to use it. And I’d tell them not to use it. Unless you couldn’t get hold of Yoni. Yeah, or shy. If anything happens. Look at the number call Yoni. If you can’t get ahold of Yoni calls, you know, keep going up the food chain until you can.

 

Stacey Simms  22:41

How did they react? Did anybody you seem nervous?

 

Benny  22:43

Everyone was like, Don’t die. You know? Like, if I have to use this, I’m gonna kill you. Everyone’s super chill.

 

Stacey Simms  22:49

Alright, I’m confused though. Red and yellow numbers because I don’t want

 

Benny  22:52

so on the pump. If your blood sugar’s low, the number like we’re, like tells you the actual number. It’s red. And if you’re high, it’s yellow. Oh, so

 

Stacey Simms  23:01

you were saying don’t give you the vaccine and the hypopyon if you’re hot. Yeah, I thought you were saying like, give it faster. You’re telling the story.

 

Benny  23:07

Okay, that was it. Yeah, if if you look on the T slim, it’s yelling at me right here. My blood sugar is totally 120 right now. Perfect. I thought you ate before the interview, please. But yeah, I told them on the right side of the screen. There’s a number typically with an arrow. If that number is yellow, and you give the hypo pan or the vaccine between me that is very bad.

 

Stacey Simms  23:32

gone, it’s gone. It’s gone. Okay, that’s why you needed to go to the hospital. Now I get it. I just you can tell I’m very involved parents that I look at all the time. And I know the numbers. You know, you got the T slim right when I stopped looking at stuff. And as a started to stop looking started to stop. But I mean, you were 12 because we’re up for renewal. Now you’re 12. And that’s like, exactly the time when I’m not going to start looking in your pants. Right?

 

Benny  23:59

Sorry, that was a weird way to word that.

 

Stacey Simms  24:01

But you know what I mean? Like, I’m not gonna go in your pocket in your pocket. And you do it yourself when you were a little like kind of like give me your pump? Or let me see, you know, or with the animals that we had the remote so it was a lot easier. But yeah, so I don’t I’m familiar with the T slim but it’s not like you had animals for 10 years and I could like fly through that pump. The TCM I have to put my glasses so

 

Benny  24:19

funny, because I can fly through this. But it’s so funny watching her dad tried to do it once. bless his heart. Oh my god, it was painful.

 

Stacey Simms  24:32

One of the other things that I was worried about was when you were going in the Dead Sea or doing some of the swimming because not only is the Dead Sea super salty, some of the other places are salty too. But it’s so salty. We’ve been told you have to protect your Dexcom transmitter. I know everything worked out. Did you cover it?

 

Benny  24:47

I did. And then it fell off in the Dead Sea. The transmitter. No the cover. Oh, so we went in the middle of summer. The water was almost boiling. You’re come we’re complaining It Like It wasn’t unbearable. We all went in for like 10 seconds to see if we could flow and then we ran out when we went Yeah, it was great. I know what it was warm say nice things. Did I not put a disclaimer? I loved the trip, but there was a lot to complain about. So

 

Stacey Simms  25:17

the band aid thingy cover fell off.

 

Benny  25:19

Yeah, we had one of the clear, you know, the clear one,

 

Unknown Speaker  25:21

we got a waterproof check agenda. Yeah.

 

Benny  25:23

So we got in and it started to peel off. And then I got out and got back in for a second. And it came off. And you know, my Dexcom was fine. Okay, good. That’s good.

 

Stacey Simms  25:33

I guess you could have floated by you would have seen it. Haha. Okay, come off. I did see it. But I’m glad so it did hit the salt a little bit kept working. Alright, that’s good to know. Did you wear anything on your feet? Remember, I told you you should bring shoes.

 

Benny  25:45

So remember those like $20 rubber shoes? I got? Yeah. Those broke on the trip to Israel, like in my backpack. So well. So one of them broke. So I had one on my left foot. And then the one on my right. I was like holding on to with my toes. Yeah. And eventually it just kind of let it go.

 

Stacey Simms  26:05

But at the Dead Sea, they were able to wear anything on your feet. Yeah, that those good because that stuff hurts.

 

Benny  26:11

Well, I took them off eventually. Because Yeah, whatever.

 

Stacey Simms  26:14

Oh, to be on. Alright, so let’s talk about diabetes tech and gear and everything. You didn’t seem to me like you had any issues we gave you. I said 150% of supplies. I think I gave you 300% of Dexcom and inset so I probably lied. Yeah, so you didn’t run out? You didn’t have any troubles. It didn’t look like you lost anything. Really. I remember texting you at one point. I remember why we were texting. But you said something like, I think I was pretending to joke but really telling you like, hey, make sure you change your insert because I was trying to stay away and not do it. Then I was trying to do like that mom thing where you joke what you’re really you know? And you said I just changed because it fell off in the ocean. So did you have an issue with stuff coming off in the water? Or Okay,

 

Benny  26:57

well, we were only in the water twice.

 

Stacey Simms  26:59

Oh, there you go. Did you change your inset every three days? Like I didn’t.

 

Benny  27:04

It was either until it stopped working or it fell. I

 

Stacey Simms  27:06

hate that you do that? Come on, man. Well, my skin heals fast enough for it. So Alright, this is the point in the podcast where I give the disclaimer again that Vinnie has had diabetes for a very long time. He knows what he’s doing. We wish certain things

 

Benny  27:22

worse diabetes mom, but at

 

Stacey Simms  27:23

some point, I have to kind of let him make some mistakes. And I can only yell at him when he’s home. So I’m glad you changed it when you needed to. I can tell by your numbers that you know everything was okay. I will tell you that my biggest fear was not an emergency, although obviously that’s very fearful to think about because I knew you had a medic, I knew Israel has good health care, you know, wasn’t worried about that kind of stuff. I mean, I was worried that diabetes would slow you down and make you feel different give you problems that your friends wouldn’t have. He’s smiling. You feel different? Yes, I

 

Benny  27:54

did. You really Of course. That’s what I worry about the most. I thought we got over that face.

 

Stacey Simms  27:58

You got over it a long time ago. But I worry still that like what I mean by that is by slow you down is you’d be on a hike and you would go low and they’d have to stop and everybody else would go ahead. And then you’d be like with the staff catching up and feeling bad, you know? Or you’d be on a camel, you got to write it down. It’s

 

Benny  28:16

so much fun and so disappointing at the same time.

 

Stacey Simms  28:19

Are you tell the story then I’ll tell you my fear.

 

Benny  28:21

They hyped us up for this camera ride for a full week. We got on the camels walked two minutes in the direction we were supposed to be heading and then walked back. They made it sound like we were gonna like full day through the desert on the camel. You say

 

Stacey Simms  28:35

you’re gonna adopt a camel and bring it home? Yes, I have never been on a camel. So that’s two minutes more than me.

 

Benny  28:41

Did you know that camel milk is actually designated as a superfood because it has all the vital nutrients.

 

Stacey Simms  28:47

I just read somewhere. And I’m not putting it in my newscast because it looks like garbage to me that camel milk cures type two diabetes?

 

Benny  28:54

Because that’s real. Yeah, since but I just read that this.

 

Stacey Simms  28:59

Yeah, this is super food though, right? It’s supposed to be really nutritious.

 

Benny  29:02

It has all the essential nutrients.

 

Stacey Simms  29:04

Oh, fabulous. But my fear would be that you’d be on the camel, you’d be low. You’d feel lousy, you’d have to get off, right? you’d miss out things. And your friends would be like, Oh, well, you’re slowing us down. You know, he’s laughing at me. But that’s the kind of stuff I worry about that more. Because you’re smart enough. The one thing that I really think we’ve we’ve really taught you well is that when you need help you ask for it. You don’t let things go, right. You’re not going to be in pain or feel uncomfortable and not tell somebody and with diabetes. I think that’s really, really important. So I know you laugh at me, but I worry about the feeling different, even though you’re pretty cool about

 

Benny  29:42

Well, I mean, I don’t worry about that. But it’s also the fact that I don’t hang around people that would dislike me for something I can’t control. I don’t interact with those kind of people. You know, if we all had to stop which, you know, we we almost never had to stop for me. I mean, I could I could keep going and drink coffee at the same time. But we stopped a lot anyway, just because everyone got tired. You know, if we stopped because of me, everyone would be like, Oh, thank god we’re stopping. With the I don’t know, can I? No, no. What the heck, Benny? Thank you.

 

Stacey Simms  30:14

Alright, so here’s a question from my friend Steven, who says at this camp, how often did you think about diabetes, versus how often you thought about diabetes at diabetes camp. It’s been a while since you’ve been to diabetes camp. But

 

Benny  30:26

diabetes camp, in my opinion, made diabetes feel like a disability, more than anything I’ve experienced,

 

Stacey Simms  30:33

will actually tell me more about that.

 

Benny  30:35

Every time we were doing something, they were like, I don’t know how to explain it. It’s just everything was centered around it, you know, and someone did their inset for the first time by themselves. But you know, good for you pat on the back, the entire cafeteria would clap for them. Like, while you just conquered cancer. Like, I mean, I don’t mean to compare it to that. But like, it’s, from my opinion, it’s like, they were like, the mindset of the staff was like, you know, even if they did have diabetes, his mindset was like, these kids have the worst life in the world. And I need to try and make it better for a week.

 

Stacey Simms  31:12

Interesting. Because when you were little when you were seven, or eight, and you did your inset for yourself for the first time, didn’t they applaud you didn’t that feel good at the time at the time, but like, I look back on it, and it’s like, okay, you clap for me, that didn’t change my life. If you clap for me, and my pancreas started working again. I think that that’s, I’m going to kind of keep this as a time capsule thing, because I think that your perspective may change as you get older, but I think very valid. Right. And you’re 16. But I think diabetes camp. I will, we’ll agree to disagree. I think it prepared you for camp.

 

Benny  31:47

It might have but

 

Stacey Simms  31:49

so back to the question, if you think you can answer it. Did you think about diabetes more or less, less, significantly

 

Benny  31:55

less, just because everything at diabetes camp was centered around diabetes, and everything was like, Alright, check your blood sugar. Now, I can check my blood sugar when I need to. I don’t need someone five years older than me to tell me that I need to check my blood sugar. And that something I’ve been doing for 10 years is wrong. Because they think it’s wrong. You know, they wouldn’t let me use my Dexcom as my number until one of the last years I was there. Yeah. And we had been doing that for four years by that.

 

Stacey Simms  32:21

Yeah. So when you’re on a trip like this, maybe because you’re the only one, somebody like you who’s confident, doesn’t really feel like they need tons of I don’t know supports the right word. But you don’t need a lot of attention to diabetes. And other than yourself, you felt like you thought about it less just enough to take care of what you just take care of. Yeah. How do you do that? Do you? I’m curious, just for a little insight into your psychology. Do you wait until you get an alarm? Are you thinking about it when you’re eating? Like how does that work?

 

Benny  32:47

I wait until I get an alarm. It is not on my mind. until something is wrong. Well, you

 

Stacey Simms  32:52

pull us for food. Please tell me you bolus for food when

 

Benny  32:54

you eat. Well, yeah. But like, other than that, other than that diabetes 90% of the time. Unless something’s wrong with it. It’s you know, there’s not on my mind, just in the background. Yeah.

 

Stacey Simms  33:04

I think this interview was good. I’m not sure people will stop listening to me, because you’re so great.

 

Benny  33:08

I don’t know. I think every time I’m on the I’m on the show your views go up about Oh, yeah. I can eat the mic again. If No, please

 

Stacey Simms  33:16

don’t. So Stephen went on to say, is there a lesson in the different kinds of attention? Is there a lesson in there for you as you get older? Or do you view diabetes camp at Camp like this as being completely non related?

 

Benny  33:28

Hmm. Because my chair gonna say

 

Stacey Simms  33:30

my answer is that diabetes camp, even though you enjoyed it less as you got older diabetes camp, when you were younger, prepares you to be more independent whether you remember it or not, because I remember Benny before diabetes, can’t think any after diabetes camp.

 

Benny  33:42

That’s all I’ll say. Yeah. You know, looking at it right now. I think I would have done just fine at Coleman without not without kudos. Definitely. Could I think everyone should go to kudos. It is the best thing in the world. That’s for little kids. Yeah, it is amazing. I must have changed, if it hasn’t changed, and your kids are right now. But CCT and Morris, they’re good for kids that aren’t, you know, 100% confident in themselves. But I mean, by the time I was like, 910, I had already gotten comfortable with the fact that I had diabetes, and I couldn’t change it. So like, be sad about it.

 

Stacey Simms  34:16

Well, and that leads us to another question that someone had, Sally asked, Do you ever feel it’s unfair that you have diabetes? And if so, how do you work through those thoughts?

 

Benny  34:25

I absolutely think it’s unfair. I mean, it sucks. But the way I look at it, it’s just, you know, I can’t change it. What am I going to do about it? Why be sad about it, and then I move on.

 

Stacey Simms  34:35

You’ve always kind of been that way in terms of accepting diabetes. And since I mean, when we’re very young, you didn’t really understand what’s going on. And then once or twice in middle school, you had some real like, I’m really upset about this, but we just talked it through. Do you remember ever kind of feeling differently or have you always you’re just such an easygoing?

 

Benny  34:53

Every once in a while when like two or three insects wouldn’t work, and like I had to change my Dexcom my inset and my car. At the same time, I lose my transmitter, you know, every once. Every once in a while, it’s like, this sucks. But I mean, that comes around so rarely. There’s so very little times when I genuinely can’t do something because of diabetes. There are times I can’t do things, but not because of diabetes. But I’ve learned to just what are you gonna do?

 

Stacey Simms  35:22

I think to the fact that we, I mean, I’ll pat myself on the back, I guess a little in that we’ve never really told you. You couldn’t do it. Let you do all these crazy things, even though I’m at home, frankly, wanting to puke. What was I thinking? But we’ll let you do it. And hopefully that helps with your attitude. I’m hoping it helps you you know as you get older. It’s the worst. All right, we got to start wrapping it up. Now. When you Okay, so you hurt your foot while you were there. You can tell that story if you want to in whatever detail you want to but I’m curious when you got to the doctors in Israel, he kicked your kicked a coral there. So

 

Benny  35:57

over, you know, a couple events happened I ended up getting a pretty nasty infection on my foot.

 

Stacey Simms  36:01

When you saw the doctors in Israel. What did they talk to you about diabetes in anybody’s feet? Sometimes people get the wrong idea and freak out.

 

Benny  36:09

So I don’t really know what the healthcare system is. Because everyone spoke Hebrew. I just kind of went along with it. I was shy. Um, so she was translating. Yeah. Well, she just told me Okay, we’re gonna do this now. I mean, I felt perfectly safe,

 

Stacey Simms  36:22

I’m sure. But she speaks Hebrew and English. Yeah.

 

Benny  36:25

So we get into the clinic. We go to the front desk, we tell them what’s wrong. They said, Okay, wait here. She told me this process normally takes about four or five hours. We were done in like, 45. That’s great. We go in to the room. We sit there for maybe a minute waiting for the doctor. He comes in. He takes like two looks at my foot. He like touches it for a second. He’s like, does it hurt? And I’m like, sometimes he’s like, yeah, it’s just really bad infection. So he gave me a prescription for antibiotics and antibacterial cream. And then we went to the pharmacy and got him.

 

Stacey Simms  36:55

So there wasn’t a lot of discussion about him diabetes, nobody

 

Benny  36:57

asked No. I mean, it wasn’t even a thought.

 

Stacey Simms  37:00

All right. Well, I like that. I don’t like that. I mean, obviously, you can take antibiotics. It’s not a big deal. But you know, it makes me a little nervous.

 

Benny  37:07

If I was concerned.

 

Stacey Simms  37:09

I know. I know. And then the opposite spectrum is they go they fuss over feet too much because they might go Have

 

Benny  37:15

you ever told the river told the story about Yes, Simon will tell it again real quick.

 

Stacey Simms  37:19

Can I tell ya, basically, about two or three years ago, at the end of camp, Vinny had a large blister on his foot and went to the infirmary to get a band aid for it. And they sat him down, they soaked the foot they called me they made me promise to bring them to the endocrinologist. They were very concerned with his footwear. They wanted special diabetes socks. Now listen, as you listen, if you’re newer to diabetes, neuropathy and feed can be a big issue. If you’ve had elevated blood sugars for years. It’s not going to happen at a 14 year old type one with Goodyear one sees what happened was I finally and I yelled at them, Benny. And if you heard, but I got on the phone. I said, Give me Benny and he got on the phone and I said, are they scaring you? Like did they make you think there’s something wrong with your feet like? And he was like, Mom, it’s fine. It’s fine. I was just terrified. They were gonna put thoughts in your head that didn’t belong there. And then I wasn’t gonna bring you to the endo, because we didn’t need to. But finally, when I saw him, we told him the story. And he was like, should I examine your feet? And he was like, No, it’s fine. All right, it was great. He was like, Okay, are you good? You’re good.

 

Benny  38:18

I think the funniest part of it all was, so there’s one nurse there every year that’s only there for the first few weeks, which is a shame. She is the best. She knows that I know what I’m doing. And trust me, right? So at the nurse’s office at the camp, there’s the front desk, and then there’s a closet in the back with all the meds. I just kind of go to bed and get ready. But you know, most of the other nurses are like, Oh my god, what’s wrong? You okay?

 

Stacey Simms  38:41

That’s Karen, by the way, who you love.

 

Benny  38:42

I love Karen. So Karen, who had like, was either in the process of leaving or was leaving the next day. And she walked in after everything had happened. You know, she wasn’t there yet. And she was like, Benny, what are you doing? That’s like, they made me do this.

 

Stacey Simms  38:59

It was fine. It was all fine. Yeah, no,

 

Benny  39:01

I’m not mad. I just think it’s funny. You

 

Stacey Simms  39:04

roll with those things very well.

 

Benny  39:06

Okay, so the camp director of Coleman is leaving, which is very sad. I love Bobby so much. I mean, him I have a pretty good relationship. But here’s a video of him going on the zip line over the lake, and he flips upside down. And it is so funny. I will show you later.

 

Stacey Simms  39:19

Okay. He loves you. I think he appreciated that you took on the challenge of going to regular camp with diabetes, and they’ve always been very good to us. Um, but start wrapping this up. Are you glad you went with all the

 

Benny  39:30

work that you had to show? I am so happy I went I’m so happy you guys. Let me go. It was amazing.

 

Stacey Simms  39:36

What would your advice be to other kids that are looking at programs that are that are difficult like this?

 

Benny  39:43

Take a job Oh, it is gonna be fine. If you know what you’re doing at home. You know what you’re doing anywhere. If you trust yourself enough to go out to dinner one night, I think you trust yourself enough to go somewhere without your parents for a couple days. It might not be a month long trip. in a foreign country, it might be to your friend’s house for a couple days. But if you think or know, you trust yourself enough to be able to take care of yourself for a couple of days, I think you should go for it. You’re always going to have someone with you, or at least you should, that cares about you, and will do things that you need for you.

 

Stacey Simms  40:19

Right as a minor. Yeah, on these programs is what you mean, right?

 

Benny  40:22

Yeah. Especially on these programs, there’s always going to be at least two or three people that can and will help you with whatever you need. I will be your question for you.

 

Stacey Simms  40:33

You don’t have to answer this. We stress experience confidence, responsibility over perfect numbers. Do you sometimes worry about your health or your numbers? or Why? What Why do you feel good about it? I mean, I think you’re doing great. I don’t want you to think you’re not. But you’re a one C is not going to be 5.8.

 

Benny  40:50

I mean, my thing is, you got to enjoy life. You can’t worry about every little thing all the time. If your blood sugar goes high, your blood sugar goes high, darling, give yourself some insulin and go to have some damn ice cream. Sorry,

 

Stacey Simms  41:05

well, when you’re high,

 

Benny  41:08

but like, if you’re 200, and your friends want to go get ice cream, go give yourself some insulin and go get ice cream. Don’t say no, because you don’t want your number to be perfect. Can I tell them the celery and kid crying in the corner joke you can try. So we have a joke. There are some parents that are really strict with their kids. And those kids eat celery and cry in a corner all day.

 

Stacey Simms  41:29

And I worry sometimes that the kids eating celery and crying in the corner are going to be healthier long term.

 

Benny  41:34

So the thing is, you know, they have perfect most kids that are eating celery and crying in the corner have perfect numbers. I don’t have perfect numbers. And I’m doing not crying in a corner. I don’t think there’s or you don’t like to watch it. But I mean, it gets the point across you know, unhappy perfect numbers. You know, you might live a full life and have perfect numbers. If you do good for you. You’re top 0.1% of diabetics. But there’s no point in worrying about being perfect all the time. Because it’s unrealistic. And it’s not fun.

 

Stacey Simms  42:06

So the last question here is when you came home, I said it’s going to be really hard for me to feel good about nagging you all the time since you just did a month successfully away from me. You’re going to be a junior in high school. We’re looking ahead to college. So I was joking. And I said I want to try to be here just for customer support. Like you tell me when you need me and I’m here for you. I don’t want to be in your face anymore reminding you. It’s been three weeks. This has been so hard because you’re in my house and now I see everything and I know what’s going on. How are we doing on that? Or is this a good situation? This is perfect. Oh God, I was hoping you wouldn’t say that. I want to make you more

 

Benny  42:42

you good. You have done great. You have done wonderful. And if you want to get a bit more naggy you can get a bit more naggy it’s not gonna change anything. But

 

Stacey Simms  42:50

all I want is for you to change that instead every three days. Put it on your calendar. I don’t

 

Benny  42:54

use my calendar, only old people use. It’s the worst. But I’ll try harder.

 

Stacey Simms  43:00

Okay, thank you. I appreciate that. Thank you very much for joining me, I appreciate you coming on. I as always, I don’t know how much of this I can actually use. We see Dr. vanderwaal. Next week, we go back to the end or next week so you can tell him all about your adventures. In fact, I need to take all the forms with us for Dr. V next week. Because we need your DMP. And you’re I’m looking for the forums he’s making fun of me looking around because we have a we have a DMP we have your 504 I gotta get all that stuff. My 401k

 

Benny  43:26

I have one it has $7

 

Stacey Simms  43:30

you really do from the grocery store. Alright, we’ll leave it there. Benny, thank you so much for joining me, I appreciate it. I’m so glad you’re home safe. Love you.

 

Benny  43:39

If your listener count doesn’t go up for this episode, I’m suing

Stacey Simms  45:24

you’re listening to Diabetes Connections with Stacey Simms. Oh, boy, so you tell me good idea to put them on the show? Let me know what you think. And I will link to our other episodes with Benny. And you know, when he was younger, and maybe had some different opinions about things, you can listen to those at Diabetes connections.com, click on the episode homepage.

I also want to mention, I realized that we left out a question that you may have, which is how did we keep the insulin cool? How did we keep the supplies cool, as you heard Benny talking about, you know, hiking through the desert and swimming in the Dead Sea and all that. And it was very, very hot in Israel at the time that he was there. And so the backpack that he carried with him that had about three to five days of supplies in it, we had the vial the Insulet vial that he carried with him in a frio you know, the pack that you can wet, we’ve talked about this many times before it keeps insulin at room temperature does not keep it cold. But it was a little free to pack that he could keep his vial in. And we also use a vivi cap. And that was new for us. And that’s something that you can only use on pens right now they’re working on vials, but that worked out really well. And you take the cap actual cap off your insulin pen, you slide the Vivi cap on it, it’s it just looks like a bigger, fatter insulin pen cap. If I’m describing it correctly, I’ll put a link in the show notes too. And it’s got a little battery in it that you don’t have to replace it lasts for a year. And it keeps it room temperature just like a frio. And that was phenomenal as well, because the that pen was really there as a backup and he uses vials, but he’ll use an insulin pen as a backup. If he needs to take a shot if he needs to pull the insulin out and stick it in his pump, that kind of thing. And that lasted the entire time. He actually never used the pen which surprised me. He says he actually forgot it was in his bag. So when he came home, we decided to see how well the Vivi cap worked. And we pulled the insulin out of that pen it had been at that point five weeks. So longer than you’re supposed to use insulin, FDA people don’t listen, we put in his pump. And that backpack had been right through the desert 100 degrees or more with him the entire trip, the Insulet in the pen worked fine. So big thumbs up on 50 cap, I’m not an affiliate, I may they may become advertisers in the future. They are not advertisers. Now there is a promo code, I think flying out there from the episode we did with them, I’ll have to check and see if that promo code is still valid, but I don’t get a kickback from it. But that product worked really well. But that’s how we did it.

And the rest of the supplies were kept on the bus or you know, in the hotel, those were kept cool while he was traveling. So he had a separate backpack that he would pull from. So the main supplies for the entire month were kept in one place. The backpack supplies were for three to five days were kept with Benny the entire time. So it was an interesting way to do it if you have longer term travel stories. We’ve talked to a lot of people who’ve traveled the world with diabetes, I’d love to hear more. I’m always interested in packing kind of stories, or don’t want to tell you about my really low point when he was gone because I had some some very nerve racking moments. But I had one that I want to tell you about for sure. And I was so lucky it happened while I was at the friends for life conference.

So I’ll tell you about that first Diabetes Connections is brought to you by Dexcom. And one of the most common questions I get is about helping children become more independent. Be careful what you wish for. Those transitional times are tricky. elementary to middle middle to high school. I mean, you know what I’m talking about right? Using the Dexcom makes a big difference for us. And it’s not all about sharing follow up. That is helpful. Think about how much easier it is for a middle schooler to just look at their Dexcom rather than do four to five finger sticks at school or for a second grader to just show their care team the number before Jim at one point Benny was up to 10 finger sticks a day and not having to do that makes his management a lot easier for him. It’s also a lot easier to spot the trends and use the technology to give your kids more independence. Find out more at Diabetes connections.com and click on the Dexcom logo.

So every summer when I send Benny away for four weeks, when I send my daughter away for four weeks, both of my kids went to the same camp they both went away for you know, a month every summer since they were eight or nine I would get the same kind of questions from all of my friends. Don’t you miss them? How can you send them away? You know, don’t they miss you? Aren’t you worried about them? And that are my diabetes friends, I would get lots of different questions right? Like how are you doing that? If the camp is not a diabetes camp, you don’t you freak out when you can’t follow him because we never use share and follow at camp, all sorts of questions and worries and things like that. So I honestly didn’t talk a lot about this Israel trip other than to a few close friends because I knew that being around other moms with type one would be supportive. Like most of Would be great. But I also knew that some of the questions would make me even more nervous than I was. And I was really nervous about this.

Letting Benny get on that plane. I didn’t even go to the airport. When we dropped him off in Charlotte, my husband had to take him to the airport, because I knew I would just be so so nervous. And I didn’t want to make Benny embarrassed or freak out. I mean, he’s so calm and cool. But I didn’t want to pass that nervousness off to him because I knew he was ready. And I knew he’d be safe. I knew this was a good group of people. But I was freaking out. So I didn’t even go to the airport to drop him off. I made it I did. Okay, the first couple days were very, very, very hard. But when I got to friends for life, which was what about two weeks in, I felt great. And people were, you know, we were talking about it, and they were very supportive. But I also felt, I felt really, almost more nervous in a way. And I still don’t know exactly what that was all about. But I think part of it was, I had worked out a plan. And I’ll be very frank, I had worked this out with my therapist, I’ve been seeing a therapist for a couple of years, not just for diabetes, but because life is just so freakin stressful anyway, but we had worked out a plan that I thought was really good, I would only check Benny’s numbers. And I shared this on an episode a couple weeks ago, I would only check his numbers at times of day that I decided I would check them twice a day, we had turned off all the alarms, except for the urgent low. And I did that I did that October of 2020. That had nothing to do with Israel. That’s just in our developmental teenage plan that has worked really well for us. So I only had the urgent low. And I said, I’m only going to check it at these times of day.

Well, when I got to friends for life. We were all having like a mom meetup. And everybody threw their phones on the table. And I really should share this picture. It was fabulous. Whatever your kid is, you know, who cares high low out of range in range, whatever. Let’s all show at this moment of time where our kids number is. And I didn’t do it because it wasn’t the time of day to check his number. And I just didn’t want to do it. And they were like Liz, that’s a great group of moms super supportive. They were laughing everybody was doing it. And finally I was like, Okay, I’m gonna peek. I’m just gonna peek. And wouldn’t you know it, he was 78 double arrows down. I didn’t get alarmed. Because as I said, All my alarms were off except urgent, low, and I burst into tears. I just all came out at that moment. It was so stressful. It was so much. I’m not sure be dramatic. I mean, you know what I’m talking about. But 78 double arrows down. And I’m 1000s of miles away. And I don’t know why it hit me so hard at that moment. Did I feel left out? Because I couldn’t just look at my kids number. Did I feel left out because I had taken you know what many would consider a big risk? Did I regret it? I mean, I’m still having processed all those feelings. I’m still working it out. But oh my gosh, did I get hugs? Did I get support? Did I get people who understand? Thank you, Heather. And thank you, Heather, my to Heather. Thank you to everybody who really made me feel okay, and not judged. And of course, a few minutes later, that number turned around, you know, I didn’t call him it wasn’t part of our agreement. It turned around and he was fine.

Now, later that night, you heard Benny and I talked about that one urgent load that I called him because it was like 20 minutes, and I kept going off and it was a compression low. It was fine. And he texted me back right away. That was actually that same night, but much later, it was about 11 or 1130 our time. So you know, he did what he was supposed to do. He communicated with me, but boy was I excited to have my community around me when I needed them the most. Nobody understands like we do. Nobody understands that pit of your stomach feeling. I knew he was safe. I knew he was okay. But still. Oh, diabetes. I’m sure I’ll be sharing more about this experience. If not the months, the years to come probably we’re still learning a lot from it. I hope to be able to you know, give some wisdom. Maybe some advice about just you’re down the block sleep over because of it. interesting note. I can’t say we paved the way for anybody. I don’t know if I’ve mentioned this, but he was not the first kid with type one to go on this trip. Kudos to those other parents. I obviously don’t know who they are. But knowing that other kids had done it certainly made us feel better. And it made it easier because the program knew that it could be done right. The leadership of the program knew it could be done.

 

Thanks so much for listening to all of that. I really appreciate it.

All right. Thank you as always to my editor John Bukenas from audio editing solutions. Thank you for listening. Our Wednesday, newscasts are growing strong. I’m so happy I decided to do this. It is so much fun. And it’s really taken off especially over on YouTube. If you don’t catch it on Facebook Live and you want to watch it with captions, the YouTube channel, just Diabetes Connections. And I’ll put a link in the show notes to YouTube. Check us out over there. But the newscast is every Wednesday live on Facebook at 430. And then I loaded to YouTube and it comes out as a podcast episode on Fridays as well. And if you’re not familiar with that is all the latest headlines for diabetes, all types of diabetes for the past week and I love doing it. That’s been a lot of fun. Alright, I’m Stacey Simms. I’ll see you back here in just a couple of days until then, be kind to yourself.

Diabetes Connections is a production of Stacey Simms Media. All rights reserved. All wrongs avenged

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